Thursday, February 9, 2012

News Of the Day 9 Feb 2012

Here are some quick news hits for you, courtesy of my various feeds, e-mails and web wanderings!


Thank - the Prop 8 Couple and congratulate them at this happy time!


Planned Parenthood Saved Me - People tell their stories of how PP impacted or even saved their lives.


Uganda Gay Death Penalty Bill Back on Table - This bill is back from 2009 and again in 2010. I swear it seems like they are waiting for the first opportunity when the world is not watching...


PSA - How to Be a Good Ally - done with solid information and a good bit of humor.


Social Security Appeals Reached New Record in 2011 - remember to appeal if your SSDI claim is denied!


HBO to Air New Film Tackling Disability Caregiving - I will not focus much on caregivers here, but this looks interesting. I will catch it if I remember!


Miss Deaf America Upset to be Unseen at Superbowl - really people? Did they not understand that she uses a visual style of communication and needs to be seen? Really?!? Petition can be found at the link.


CNN - Fire Roland Martin - Martin made a homophobic crack during the Superbowl, but claimed it was just about... soccer? Petition available if you think differently.


Get Involved - at the National Partnership for Women and Families.


Extend the Unemployment Lifeline - automatic letters courtesy the SEIU.


Find out - if your Senators and Representatives support the "Buffett Rule."




Wednesday, February 1, 2012

Koman Ditches Planned Parenthood Abandons Poor Women

For those of you that do not know me, I think Planned Parenthood is awesome. But a lot of people out there do not share that opinion. They think that since a tiny portion of what Planned Parenthood does is related to helping women that need legal abortions, that PP should be burned to the ground and the fire victims left unmourned. I think those assholes should go to whatever hell they believe in, and let the rest of us live our lives as we see fit.


Recently, these wicked forces have been pressuring the Susan G. Koman for the Cure Foundation. NPR breaks some of it down here. The Washington Post has some news here. Now, many have valid issues with the Koman Foundation, and  we are not going to debate those here and now. But overall, what they are doing is a Good Thing (TM). Until now. Now they are leaving poor and rural and black and brown women to fend for themselves else they face the PR Monster of the Forced Birth advocates. (No, I will not call them "pro life" because they only care about control of the uterus, not promoting life.)


Apparently some of this mess originates with Karen Handel, Forced Birth Advocate and Governor of Georgia. Slate has a take from Amanda Marcotte here, with a good run down on why some people have problems with some of Koman Foundation's practices. Jezebel theorizes that Handel, part of Korman's staff now, had much to do with putting a new rule on the books to easily eliminate the funding going from Korman to Planned Parenthood. The thing is, Koman added a clause to their eligibility requirements that includes not being under investigation by any state or federal agency. This gives the Birth At Any and All Costs Advocates an easy in - they do not even have to prove wronging, they just need to keep up continuous investigations. How convenient. For them.


Donate to Planned Parenthood. It is almost tax time, please find a spare $20 to help a life, maybe help save some.



Tuesday, January 31, 2012

The President's First Hangout

Note: I am writing wrote this as the Hangout happened and I watched it on YouTube. The hangout, I think, will be archived on YouTube here. (I am having tense issues, writing it as it happens knowing you can only read it later - so please pardon the ones I do not catch. Thank you!)


This was exciting! I love that this White House Administration is on top of tech trends and that they are using G+ to interact directly with the public. The people they picked to speak to President Obama are smart, have good questions, and over all are leaving a good impression with me. PotUS seemed comfortable and real (as real as a politician can be, anyhow), like you are talking to him and not the facade a lot of people in politics seem to put on in public.


The wife with the unemployed husband had a very real story. I am impressed that the President delved into it, finding out his specialty and asking for a resume. He treated it like he was dealing with lives and not talking points.


The #Occupy protester reached out and squeezed my cardiac muscles in a way I did not expect. It seemed kind of hollow to go to "grow the economy" as an answer, but I guess I understand it. But the big picture plans ring hollow when your stomach is empty.


The mom that is asking about children and learning about economics
PotUS rightfully mentioned Know Before You Owe, which is a new program from the Consumer Financial Protection Bureau. You cannot just have one talk about how to manage finances with your kids. While they should probably not have a lot of contact with the family's personal finances, they should know that this is something they will have to manage and get solid advice on how to do so.


I like the explanation that the President gave on foreign aid. It is less that one percent of the budget, and that needs to be emphasized in the conversation. He touched on the strategy and human interest involved. People misunderstand almost everything about foreign aid from how much we spend to what we spend it on and why. Sometimes we give money to people that, as they say, "hate us," but still have a good reason to spend money there.


The next question was about unmanned drone strikes. The President does not believe that the drones cause "large" numbers of civilian casualties. I think there is a perception problem there, but that may just be me. If it is your child killed in a drone strike, even that one death is unacceptable as an operational risk. He emphasized the information gathering that happens before a drone takes off and that they do a lot of work to make sure that they are going after appropriate targets only and do their best to minimize civilian casualties. I disagree with him here completely, but feel he answered the question fairly well.


The next subject as education and employment. Who needs what kind of training? Maybe, said the President, you want to be a graphics designer and only need a two years or a six month program before you have the skills to do your job well. Then he moved on to the changes made in student loans and cutting out the middle man in getting school funds directly to student. Then he mentioned encouraging tax credits for families with students in colleges and universities. The President has also asked the states to help more with funding schools and programs. Then he went to rewarding innovation and good ideas from schools that save money but get the job of educating done.


On the same subject, he talked about how the economic outlook is hitting people as they try to plan their future like college. He acknowledged that it is difficult to invest in a higher education if it looks like you may never be able to pay it back. He does congratulate young people for having such a keen and able eye on their future, but continues to emphasize that they will do better with a degree than with a high school diploma.


SOPA and PIPA were brought up in a question. President Obama spoke about protecting against internet piracy while allowing ideas and information to flow freely. He does seem to have some respect for the open culture of the Internet, which is unusual in our politicians. He addressed a case involving extradition and revealed that he is not involved personally involved in it.


And then came Alpha Cat! He asked his question as President Obama and it was funny but not disrespectful. The President stated that he felt that the ability to poke fun and satire political figures is important and speaks to the strength of our democracy.


The Hangout members were then given the opportunity to ask a quick personal question. The first one was about the PotUS and dancing. He answered it with grace and humor. I felt like there were uncomfortable racial overtones in asking a white person asking a black person to dance for them, let alone the President of the United States. The next questioner asked if he could be the personal physician to PotUS after he graduated. The third asked about how it felt to no be able to go get a snack at a convenience store if he wanted to - and the President talked about the nuts and bolts of just wanting to go run an errand. The forth questioner asked if PotUS would come to his school and expand the under-dog school's prestige. PotUS responded with the idea that their participation in the Hangout/Interview would hopefully help with that (as the only school participating). The last asked about the President and the First Lady's upcoming 20th wedding anniversary. He stated that there may be some logistical trouble since it is in October (near the election) and he may have to delay a big celebration. She also asked to and then put her children on camera briefly. The President smiled and eagerly told her to bring her kids out, which was pretty cool.


The Hangout was quickly and neatly wrapped up. I am really impressed at how smoothly this went. With both pre-recorded and live questioners, it could have been a big mess. Hell, I was on the page before it started and even their "Hey is this thing on" was professional and brief. Over all, I want to see a lot more of this kind of near-direct interaction with the President and his Administration. The White House already has an A+ in my book on their use and understanding of tech and social media.

Monday, January 30, 2012

The Real Newt?

This may seem random, but I was a little touched by Republican Presidential primary candidate Newt Gingrich's talk of moon bases yesterday. If you did not see Rachel Maddow's take on it, you should. Now, there are all sorts of trouble with the idea of a permanent US state Moon Base - and the next time he talks about it Newt must wear a Nehru jacket and carry a long-haired cat. 


But I wonder - is this an glimpse into the real guy? Are we seeing a boy that used to doodle lunar landing modules in Literature class? Or dream of being an astronaut himself? I became politically aware in the 80's so Gingrich has always been the nightmare jumping out of the closet to me. For 80's folks, Gingrich in charge of anything is always the worst case scenario. So when I see him talking, which is all the time lately, it is the Conservatron1000 I see: he is a talking points generator, and all attack all the time monster. 


Yesterday, though, I think we may have actually seen a little bit of the real human being. This is not Newt's first instance of space love. I think we are seeing a tiny, fragile, abused and emaciated boy-soul in there when he talks about this moon base. Now he seems like the little boy in the Despicable Me flashbacks, dreaming of the moon to the displeasure of his mom.


And I hate seeing that little boy-soul. Because I know that Newt and people like him never see the human being behind my political, social, philosophical, sexual, deviant beliefs. That ability or even willingness to acknowledge our shared humanity is completely one sided. There is no way that the Gingrich that wrote that language memo is going to give a damn about my humanity. So it kills me to see his.


Side note: I keep hearing the Space Sphere from Portal 2 when this subject comes up.



Friday, January 27, 2012

Ask the Reader: What Do You Want?

I am looking through my old notes and working on some new content for you, Dear Reader. You know I am guessing over here, right? I did not get any SuperCrip abilities when I got sick. I know, right? And while I can read faces, body language and voices and tone - I am not actually psychic.*


What I want to know is this: what do you want? I have never actually asked you, the people I am actually reaching, what you would like to know about me and my situations. So take a moment and write a comment (they are moderated for your sanity and mine, but yours should show up pretty quick) and let me know. 


Here is a list of some of the things on my mind that I am currently scribbling about. Some may even live to see the light of day the Web! You can add to this list with new things, or just say "Hey, I would really like to see #4!" or "I have always wondered about that #2." I am feeling energetic about this blog again, and I want your help to keep that going.



  1. Gaming while disabled (and female, and lots of things!)
  2. Playing Star Wars: The Old Republic.
  3. Wheelchair modification or maybe even building from scratch.
  4. Poly families and Newt Gingrich.
  5. Engery drink reviews! I really dig energy drinks.
  6. Internalized ableism (thank you, Marcus!).
  7. Plan B.
  8. The a very brief history of abuse by the medical community of the marginalized and how it continues today.
  9. Some of my fandoms and how even some of my favorites treat disabled folks, you know, me, very badly.
  10. Cripdrag and why it is a bad thing.
  11. Occasionally I will ask you for advice or opinions.
  12. I want to write about being aviodant. If you know what that is you know that it is a kind of funny contradiction...
  13. Parenting while all of this is happening.
  14. Considering Buddhism.

* Yes, this means I know when people in front of me lie to me. Every time. I do not always same some thing, and if I cannot prove it to doubters, I may even have to still go along with your lie... for a while. But never, ever doubt: I know. Hell, maybe I could write or do videos about that...

Friday, January 20, 2012

On the Word "Lame"



Transcript below the break.


Thank you to everyone that has sent me notes about this video. Your thoughts are greatly appreciated by me.

It is nice to be back.



Tuesday, January 17, 2012

Internet Blackout and #TeamBlackness




Tomorrow is a day of Internet Black outs in order to spread awareness, action, and anger over SOPA and PIPA. I know I want you aware, acting, and angry over it. Essentially these pieces of legislation are like the Lupus of the Internet - damaging or destroying the body of the Web in an effort to over zealously protect IP ownership. You can, and should, since you are consuming content on the Web, find out more and sign the petition.

Today I worked on a small project, a simple web page for #TeamBlackness. You can see it in the side bar over there ->, and I think you should.


So poor timing on the relaunch/'net black out. See you Thursday, if all goes according to plan!

Monday, January 16, 2012

Relaunch!

Hallo! It has been quiet some time, no? Well, the silence coming from my little corner of the Web is done. This is my official relaunch of my blog! While my silence has been due, in part, to laziness; I have also been writing a lot, and thinking even more.


What do I want PatientC to be? I want it to be a tool for making the world a better place - even if it is just a tiny bit, a teaspoon at a time. I want to talk about what is on my mind freely, without fear. I have spent no small amount of time looking at the history of social justice bloggers that have been bullied out of the Internet and talking with my family about the possibility of that sort of thing coming to our door.


I have decided that I will post about whatever is on my mind. So not every post is going to be about disability or related things or maybe even social justice. 

  • I may talk about gaming, especially video games. 
  • Hell, I have a stack of energy drink reviews - I could justify those as being a defense mechanism against both my internal fatigue and the fatigue produced by a couple of my medications. But I also simply like them, and like trying new ones. 
  • When my hands can manage it, I knit, so that may come up. This is an election year, so you can bet that I am going to talk about that. 
  • I may post consolidations of the days action items for you to participate in or not as you choose. 
  • Other social justice stuff will definitely come up. So you can expect posts on sexism, sexual orientation, race, class/poverty...
  • I am studying Buddhism, so expect that to be a subject that comes up with some regularity.



The truth of the matter is that I am a human being, along with being a woman, being disabled, being bisexual, dealing with poverty* issues, or any number of things. So a lot of things come up in my life and in my addled brain, and I may share any of them with you at any time.


If you see a story, issue, or item of some sort, and you think I might be able to write about it in a worthwhile way, let me know.


I will be expanding my efforts to include more regular writing, some videos, and expanding my concept of what I can do and share with you.






*I am a poor person lucky enough to live as a middle class person. It is complicated.

Tuesday, July 19, 2011

Things That Make My Life Easier: Gold Violin

So, I stumbled across the web site Gold Violin recently. Once I got past the fact that most of the pictures for their living aid devices involve old white people, I found a lot of useful stuff.

As with all reviews, unless otherwise stated I bought the items in review myself. As a guard against being unduly biases – I will always let you know if I receive an item at a discount or free to review!

Agenda Pill Box – This is on sale for $8 from $40 – I think part of that is that the calendar inside is old. That did not bother me, I do not need another calendar, and I bought a small flat notebook to slide into that section in case I do need to write something down while I am taking my pills and do not have anything else near by. Here is the description from their site:” Closed, it looks like a handsome appointment book.  Opened, it's both your calendar and 7-day pill organizer.  Each daily compartment holds up to 4 doses, keeps your medication secure and slides open easily when it's time to take your pills. 8 x 5 1/2 x 1 1/2.”

I really like this pill carrier. Now I only have to organize my pill dosages once a week instead of every day. I can remember to add the over the counter stuff I need to take daily with ease. The daily containers have four slots, and my only gripe is that in order to make sure the top does not slide off – the opening is restricted to three compartments on one side, and one on the other. This means that I have to open, close and open each one in the process of filling them. Okay, and I wish I could have gotten it in black.

My Meds Ledger: “My Meds Ledger keeps prescription information organized and at hand in case of an emergency, with room for up to 12 medicines. Both fold to the size of a credit card. Magnetic closure. 3¼”Wx2¼”H.” They also make a Login Lockers, with the same format – for keeping track of web sites with log-ins and passwords. Normally $5, as of my writing it is $4 on sale.

I like this item, but care should be taken when storing magnets in your wallet or purse. As with all small record keeping items it may be tough to record your information legibly, but that goes with the territory.

Up next are the Walking Stick Accessories - Corded Wrist Strap.I bought two of these, gold for my clear Lucite cane and black for my black fold up cane. These are also available in red. They are damn useful for when you need your cane hand for getting into your wallet or whatever. I wish they were just a tad longer, though, for when you need to slide it a little further up your wrist, or get it off your wrist faster. After a while, the elastic wrap around the cord stretches out a bit, but for now, mine is still okay. About $7.

I bought two types of sunscreen:  Sun Protection in Spray-on and Insect-Repelling Styles. “Waterproof Topcoat covers the areas most exposed and most often ignore - your scalp. Non-greasy, protein-rich formula is SPF 20+. Sunscreen with Insect Repellent Lotion combines SPF 25 with all natural insect repellent. Safe and effective, it’s enriched with soothing aloe and Vitamin E. Both formulas withstand salt water, swimming pools and sweat up to 80 minutes.” Regular price was $10.00, as of writing these are now sold for $5.99.

I bought both of these, and am very pleased with them. They do not wear or sweat off quickly. Now, you hair looks a little greasy where you use the scalp spray – but that is a hell of a lot better than the painful red peeling you would get with a bare scalp. The bug repellant is effective and the scent is not as people-repellant as most insect sprays/wipes can be. It also seemed to be well-tolerated by my DEET allergic friend.

For my husband, I bought Foot Crème: Heel Rescue. “Thick, luxurious cream penetrates, moisturizes and repairs dry, cracked skin, leaving your heels feeling soft, smooth and revitalized. Contains CoEnzyme Q10 that boosts the body’s natural ability to renew itself. Non-greasy formula. 16 oz. jar with pump dispenser.” The regular price is $9.95; the sale price is $5.99.

I bought the Heel Rescue for my husband, and he appears to be very happy with it. He suffers from bad feet, and has for years – but they seem to be getting better now: more smooth, less calloused, more appealing. I have used it on occasion, it seems to do a decent job.

Delivery was quick, e-mails kept me on top of the status of my orders with little effort on my part. One negative thing is that the web site is not always user friendly. A solid example is this: the site allows you to build a wish list, but finding it later is not intuitive. In general, my experience with Gold Violin has been very positive. I have placed other orders since my first one and remain well pleased.

Monday, July 18, 2011

SmartAss Politics, I Have Them: Fathood

As I was writing about my politics as one piece, I noticed that it grew pretty big very quickly. I am breaking it down into parts, which will hopefully be less irritating, and allow me to explore each piece a little more coherently. I started writing about the politics of fathood a while ago, in response to someone being Wrong on the Internet. The timing of that incident has long past, but my views are still the same. So, come, and share them with me!

Wall of Text version: I am a big liberal, you may want to get used to it. I hold the lofty belief that the world would be a better place if we could all be the people we want to be (without causing harm to another, or hindering their ability to do the same), as determined by our own ideals. I also believe that a representative government has a duty to make sure that we all have the opportunity – an equal opportunity – to do so. While I am talking about my beliefs, I want to include that government should maintain a social safety net for those neglected, ignored, and/or abused by that society.

I believe in the use of the word “fat” as a value-neutral term.That is easy for me to say because I am not considered fat. I have been fat - or at least reacted to in a manner that suggested the other person thought I was fat. I have considered myself fat (hello there, body image issues, how have you been?). I have never been called fat by anyone since I left my parents home. As an adult, I have weighted from 105 to 175 pounds at different points in my life. I am personally uncomfortable using the term fat because I do not believe that the use of it as a value-neutral term is wide-spread enough for me to assume that it is being heard in a value-neutral way. Do you find yourself asking WTF is this “value-neutral?!?”  I say this: fat is a descriptor, like brunette, tall, or tan; rather than a judgment indicating lazy, gluttonous, jolly, etc… And while that is what I mean when I say “fat” I shy away from using the term at all for fear it read as a judgment even though such is not my intent.

Here is an interesting article: New York Time: Body Mass Index Can Be Misleading.

I believe that the BMI can tell you that you are obese, and yet your cholesterol, blood pressure, and heart health may indeed be fine. I mean that you can be heavy and healthy at the same time. I know for a fact that your BMI can be “ideal” and you can be an internal mess – that is where I find myself lately. So my “The BMI does not indicate health” stance does go both ways. Any meaningful use of the BMI must take into consideration the origins and original purpose of it, along with its inherent flaws.

I know I am going to fuck up being a good ally on occasion. I hope it is a rare one. Not only is it the right thing to do, but this issue challenges a lot of people that I care about deeply.

Now, articles agitate folks every so often, and I do not want to get into that one way or the other but I am glad that the discussions happen. I lay clam to being fat accepting, but there are people you should be reading if you want to really get to know what that means.  The Fat Nutritionist is a good start.

First, Do No Harm is a place where people can go to talk about fat-phobia they are subject to from medical professionals. I have seen this in action. I have watched my husband’s knee and back concerns blown off by tying them to his weight (he had bulging disks, and a torn meniscus/missing cartilage in a knee).

Now, of course there are intersections between disability and size-acceptance, and s.e. smith talks about that really well here.I love s.e. smith, as you all will probably figure out sooner or later.


I am sure this topic will come up again in the future, but this looks like a good start.

Do you have a Health at Every Size or fat acceptance link or story? Share it below!