SmartAss ProTips: Your Med Backstory

I want to have some resources here for you to use if you want or need them. While writing a piece on Go Bags, I realized that I had not talked to you about putting together a basic medical summary. This is the first thing you want in a hospital/medical BugOut/BugIn bag, or any travel bag for that matter.

Nissi (a black pitt) and Lucky (a tawny Chiwowow) keeping the neighborhood safe by sniffing a suspicious tree.

We will get into what Go/BugOut/BugIn Bags are, why you may need one, and a guideline of things to consider when making one. But before that, and Go Bag or not, you should have a MedStory!

MedStory is my own term for a unofficial medical history. Anything written my you will be considered unofficial - remember, patient reporting is considered the least reliable source of information around by docs, etc - but that was before "fake news." 

Even if you are not doing the whole Go Bag thing, you should do this. Even if you are healthy, you should do this. Keep a copy in your bag, in your car... You know your life best, so keep it where you know it can easily be found in an emergency. Since this will be too big to fit in the typical wallet, a note near your ID that indicates where your history is stored could save your life or the life of someone else if you are a organ donor.

I am going to give you what I think would be useful, and you can use or change it as you see fit for you and your family. We are going to cover information personal, medical, and medicinal. If you have a suggestion to add, please comment below and we will all benefit!

When you write your medical summary, imagine the conversations you normally have with medical professionals, only this time they need to know and you are unconscious with no family or friends present. There is a lot of information to think about here. You do not need to let yourself be overwhelmed by it. Take each suggestion one at a time. 

Ideally, you will have a summary for each family member. Even if you are around for your spouse, kid, or parent experiencing medical distress, this stuff is stuff you want to just hand off and not worry about - you will have enough worries.

Start with the basics: your name, address, phone numbers should be at the top. Another very important piece of information is your emergency contacts: their names, addresses, phone numbers. Who is your next of kin? Who is authorized to receive and act on your medical information? Do you have Advanced Directives (also called DNR orders). Do you have a medical power of attorney? You should have a copy of that in here, along with a notation of the location of the original, should it be necessary. Are you an organ/blood/marrow donor or on a registery?

While the rest of your medical information is covered below, next you should list your allergies, whether you think they would be an issue or not. Example: an egg allergy could really mess you up if you are given certain vaccines. So list them all is my advice! Make a note of each allergy & severity. Iodine makes me itchy, but penicillin will kill me.

You also need to mention any conditions, illnesses, or whatnot. Some people will list psychological diagnosis, and they can be important, but others are not willing to disclose them without establishing, personally, that it is pertinent and that they feel safe doing so. Sometimes an illness can be figured out by the meds you take, but do you really want people guessing at that moment?

You also want the names, addresses, and phone numbers of any health care practitioners you are currently seeing or have seen recently (last couple of years). If you have seen a specialist, you will always get asked why you saw them, so list that too (example: saw a pediatric gastroenterologist for stomach pain that resolved on its own or a physical therapist for SI joint dysfunction that improved with a completed course of PT). 

Now you need to detail what you are normally putting into your body. List any over the counter (OTC) or prescription medications you take, no matter how innocuous it may seem to you. If you take ibuprofen for occasional headaches, they say so. Please keep in mind that many prescription medications are used for more than one application, so list the reason you are taking it. Also list any herbal or homeopathic intake. 

I want to say if you are taking anything illegal, you should put it here because sometimes your docs really do need to know, but you have to make that call for yourself. 

So that is a good start. I will update this article as experiences or conversations make me wiser. If you have a tip, let us know below! I am considering making a Google form or something, what do you think?

Dear Bill Maher

Dear Bill Maher:


Fuck you.


Wait, perhaps I should explain. On your HBO series, Real Time with Bill Maher, episode 238, after your opening monologue, you conducted an interview with Dr. Drew Pinsky.


For the most part, it was the standard off-and-on funny middling self-help celebrity interview. I had some hope that this would be good stuff when Pinsky called "bullshit" right away on some of the standard thought processes regarding celebrities and addition. Even better, when you both touched on how street drugs seem to, regarding addition in general, have different, less fatal outcomes than prescription drug addition. This is not part of current common wisdom and needs more discussion and scrutiny. I thought it was useful that you two delved into why celebrity addiction deaths seem to follow a pattern regarding "downers." It was really poignant when you two mentioned that sleep is the one thing that no one, no matter what their wealth and status, can order up on demand (particularly once one has built up a resistance to  Benzodiazepines , etc...).


But you and Dr. Pinsky talked a bit about painkillers, and you went so far off the rails you crashed the train in to the station. You quoted a statistic stating that while USians are a small percent of the world population, we use 56 percent of the painkillers and asked "What is it about Americans that we cannot cope with pain?" 


Deep breath, here we go...


So just starting out you make a gross generalization (and I do mean gross) and make me wonder what the hell is wrong with you. You give that statistic without citation, and with a number of assumptions. Have you even thought about what may be contributing to that statistic? That perhaps, with our extended lifespans that people are living longer in bodies that become more and more prone to conditions that cause pain? That there are numerous conditions out there that can not be cured, used to be fatal, but now are at least partially manageable and that one of the things that needs to be managed is often pain?


What is really important here is that you are feeding a stereotype of Americans using painkillers that itself can be deadly. Chronic pain is a vicious thing that uncoils into every aspect of your life, poisoning it. It does not just harm, it kills. Chronic pain kills enjoyment. Chronic pain kills serenity. Chronic pain kills relationships. Chronic pain kills self esteem and self reliance. Chronic pain drives people to suicide.


Do you have any idea how many people I hear from that live their lives in more pain than necessary, not out of deprivation but because of the stigma of pain killers? It is all I can do to not stop right now and sob just at the thought of the needless pain that I personally know is out there this morning. I am now, right now, needlessly suffering because my current pain killer and dose is no longer effective, but I just do not want to wrestle with my health care network. I just do not have the mental and emotional stamina to face being treated like a criminal because I have the misfortune to have a body that hurts.


Mr. Maher, please quit feeding the stereotype. There is genuine suffering out there, in here, that should not exist. If nothing else, in this modern age, we ought to be able to alleviate suffering. Our willingness to do so is part of our measure as human beings. 


I will toast you, Mr. Maher, the next time I take my nearly criminalized, carefully measured and monitored, and now rapidly approaching useless pain killer dose. If you cannot speak of those in pain or chronic pain with some humanity, compassion, and education, then please do not speak of us at all.


Edit: spelling error, 2/26/12

MSNBC and NAFC: Ed Picks Up the MSNBC/Free Clinic Mantle

Connecting people with life saving health care should not be a political issue.

Ed Shultz made me very happy last night. Although he did not mention Keith Olbermann’s early involvement with MSNBC and FreeClinics.US, he did pick up the mantle last night. He announced a new fund raising drive for a free health clinic in New Orleans, organized by NAFC (the National Organization of Free Clinics). To be fair, Ed was actively involved while Olbermann was at the helm of the effort – I had simply feared it would be either forgotten, or deemed to inconveniently reference the ex-MSNBC host.

If you are not familiar with the work of National Association of Free Clinics, you should definitely check them out – if you can donate, have access to a venue, can volunteer or if you need services. They have added a new way to donate $10, just text HEALTH to 50555.

The announcement is a must watch, and the interview that follows both stresses the importance of the work of the National Association of Free Clinics and lets you know what you can do to help, or to get help. I was only a little surprised to hear talk about the suicides they prevented. Besides helping people with neurological and biochemical issues;  just getting someone the help they have lacked for a chronic condition, or putting them on the path to a diagnosis which can make a huge emotional and mental difference in a person’s life. Life is pretty bleak when you know something is wrong with you but you have nothing but your word to back that up. Things can spiral wildly, until the only power you may feel you have is to decide when and how to end it all.

NAFC does great work, and deserves support. People depend on their clinics. It is sometimes a literal life and death issue. Help them out if you can. Go to them for help if you need.

Wow, Folks!

Well, people, I want to thank you for getting the word out on my wheelchair etiquette piece. The response was amazing! (Also, a little scary, but I am avoidant, and we can talk about that some other time.) I am very gratified by the traffic, and by your comments, I do not know what to do or say other than to thank you.

So, thank you.

I have been alternately busy, sick, or both busy and sick lately. Okay, and a little bit of Halo: Reach in there too. Blame SLE/lupus, the Democratic party, my birthday (woot!), maybe Bungie, and definitely me. I have a bunch of stuff in the works for Patient C, but I have some juggling of priorities to do, too. Yes, a round of sighs all around. 

I promise I have some good stuff going, but some of it it is also tough -- recounting atrocious stories in order to get to the meat of various matters takes more courage than I can sometimes muster all at once.

The SmartAss Guide to Wheelchair Etiquette

(Updated!)

Alright, this is going to consist of one solid concept and then variations on what to do with that concept. With the amount of faux paux, ignorance, and just straight up bad behavior I have seen myself, I feel like this is necessary. I do not believe that I should have to add a sarcasm warning to something with the words "smart ass" in the title, but there you go.

If you find yourself sputtering “But, but…” or getting angry or defensive – well, you will have to deal with that. There are guides out there that are more politic, nice, and cater to the discomfort that the able-bodied or temporarily able-bodied feel in these situations. I do not give a damn about that. You have been warned!

Main concept: a person in a wheelchair is just that – a person in a chair. Person. Chair. That is it. The corollary to that is this: do not do ridiculous shit. If you remember nothing else, remember this, and it should guide you well.

Editorial note: I often just say "wheelchair" as that is the scope of my experience. As far as I know, all this also applies to the users of scooters and power chairs. If I am mistaken, please let me know in the comments and I will happily make appropriate changes.

Now let’s talk about how that plays out in real life.

Medical Information Binder

Okay, we talked about your emergency wallet card, so I think now we will go to your medical binder: who needs it, and what should be in it. I keep a medical binder, and I know a handful of people that also have one, and it can make your life a lot easier. Now, I am not talking about the medical file that most people have at home, where you keep all your doctor information, your insurance stuff and your receipts.

Please keep in mind that I am not a medical professional. Sometimes I jokingly refer to myself as a “semi-professional patient.” This is more of a been-there-and-done-that road weary kind of advice. Okay? Okay.

(Here is my first attempt at a blog jump, here we go!)

Great Link!

Second Shift for the Sick is a blog post I read tonight, and just wanted to jump up and down yelling, "This! This! THIS!" You know, without all the actual jumping or yelling.

The post is a great description of just how tiring it is to be chronically ill. How tough it is just to get up and be on some days.

I am so tired of worrying if I am making other people uncomfortable just because I am sick. Some days I understand that I remind other people of their frailty, their mortality. Other days I just want to tell them to eat it.

I will write more tomorrow. I think I am starting to get a feel for this blog.