Showing posts with label kids. Show all posts
Showing posts with label kids. Show all posts

Thursday, June 23, 2011

Lupus Gimp, How Does Your Garden Grow

With gardening ProTips!

Whether it is in a small pot on a table, or in the section of yard I have claimed for my garden, the smell of freshly turned earth turns me on – not in a horny way, but in a “this is really real life” special kind of way. It helps me feel productive and connected.

I call it my garden because it is my idea, and I am the one that insists on having it. Everyone in the household sees the benefit of it. Everyone in the house contributes effort to it, either because they want to, because I ask them to, or because it increases their allowance. It really is our family garden.

I am not able to do a lot of the physical work of maintaining the garden. My men folk did most of the tilling (I could barely start the damn thing, let alone hold it while running). I did the actual planting, since I knew how to do it – and I would not be mad at anyone else if the planting went bad. The girls prepped the ground for and planted the marigolds around the outside of the garden fence.

Getting out in the garden is trouble to begin with, precautions have to be taken. Bug bites hang out for months on me, so bug spray. The sun is trying to kill me; so long sleeves, pants, gloves, and a hat are mandatory. Sunscreen is just as necessary. I have one of those fatigue-fighting floor mats to use to get down on the ground so I do not waste energy bending or squatting. I can cut this mat to fit rather than trying to squeeze myself onto one of those narrow knee pad panels. I try to do most of the work early in the morning or in the last light of the day to cut down on heat and humidity exposure.

The work has to be broken up into small, 15- 20 minute blocks, or I run myself into the ground far too early. I can only do a few of these before I either need a large break of a few hours, or I may just be done for the day, anyway. I can go for a bit longer if I know that no demands will be made on me later –either physical or mental, because the fatigue shuts down all systems.

Even when I remember to do all of the above – take these precautions and more, there is still a price to pay. For even two to three hours working, I will pay for it by being near useless for up to a week. It is unpredictable. I can influence the odds, but not the roll (I hope that analogy makes sense). I know I will be down a day or two, minimum. Down meaning down to minimum activity: hygiene, dressing, feeding myself, maybe some mindless web browsing. Trashed is also always a possibility: easy clothes if not sleeping clothes, easy food, moving only when I have to do so, asking other people to get things for me, doing nothing I may need to remember later or have any competency during. My right hand will always be near useless for 3-7 days.

Over the years, we have acquired, piece by piece, good tools. Good tools cut down on body wear and tear. Believe it or not, I used to break the garden ground with a shovel – I had the strength and enthusiasm, and we did not have a tiller. Now we have a tiller. Good gloves keep my hands from getting beat up too much too fast. Decent hand tools with soft grips have done wonders.

D has laid ground cloth this year, which is awesome. It removes about 80 % of the weeding I would otherwise need to figure out. Anyone can weed around the larger plants, but until they get big and obvious, I will need to weed around the romaine and spinach. I will also have to do the thinning. Both my guys are happy to water the garden for me.

We are growing tomatoes, squash (straight, crook-neck, and one spaghetti squash) and zucchini (same type of plant), one green pepper plant, spinach, a romaine lettuce blend, cucumbers, and some small onions. Marigolds are planted around the garden fence in order to improve the view and discourage pests. In pots we have strawberry plants, chives, mint (may have drown in the last rain), and oregano. I planted rhubarb and asparagus in the garden but I do not think they will make it (I should have researched first, instead of going on the package!). If they sprout I will need to transplant them to large pots until I find a good, permanent home.

In short:
  • I love gardening.
  • Fair division of labor according to knowledge and ability is essential.
  • Taking care of myself means I get more done.
  • Trust that once you delegate, problems will come to you – do not hover!
  • Working smarter is so much better than working harder.
  • Good tools mean less work, less wear and tear on the people doing the work.
  • Yum!
Do you have any gardening tips? Leave them below!

Wheelchair Innovation by Teens in Plainfield

Every once in a while, I get to write about something cool and fun and human. This is one of those times. 

According to the articles listed below, Stephen Scholl is a senior at a local Plainfield, Indiana high school. He participates in a recycling program that has been wildly successful at his school. In an article about his Life Skills class and classmates – a fellow student saw a picture of Stephen and a need he could fill. Tim Balz and companions got together to build Stephen a powered chair to replace his manual one. This would make many aspects of Stephen’s life easier, including collecting recycling.

This effort has grown well beyond both teens and their friends and family. I found this story through a link sent to me by D, here at the IndyStar.The comments are surprisingly civil for the Indy Star (as of my reading of them), but one should probably exercise caution anyway. Besides the local paper of record, this also received coverage from at least one local news station, WTHR.
This is also a good article, although the comments are a little more problematic as some of the commenters are unfamiliar with “people first language” and poorly defend the author’s use of the phrase “wheelchair bound.”

This has grown into Wheelchairs for Special Needs. If you go to the linked Facebook page you can get caught up on their current and past efforts, and find out where you can help. From the comments at the IndyStar article: “I received an e-mail back from Josh Duke, the author of this story. He said that if anyone is interested in donating to Freedom Chairs, they can contact Tim Balz directly at wheelchairsforspecialneeds@gmail.com

From the Facebook page: “Great News! It turns out that we are [allowed] to accept donations. The only issue is that we cannot give tax deductions at this point in time. We will soon set up a method for you to be able to donate!”

Enjoy your day!

Tuesday, March 29, 2011

SmartAss Protips: Bedrest

I wrote this on a disability discussion board, and thought it would be good to post on PatientC!

I wracked my brain to think of the things I do when I am stuck in bed, and here are a few things I remember. This tips may help you in a temporary bed rest situation, and if you think they will, feel free to use them. If you have tips of your own, please share them in the comments!


Planning - this helps me a lot, as it reminds me that bed rest will not last forever. I take my upcoming projects, write them out and plot each step. If the malady itself will screw with the project (say the project is knitting and my hands are messed up), then I include what recovery milestone I need to reach in order to complete each particular step. If I can, I may go ahead to work on the project up to the point where I cannot anymore, in anticipation of getting out of bed again.


Communicating - I try to get things out of my system. I talk with family, e-mail friends. Feel around, see who is able to get it enough to share with them and then do so. I say that with this caveat: people will surprise you. Some folks you thought would be there will flee and some that you maybe thought couldn't be bothered will come through in amazing ways. Writing works for me when I do not feel like another person is available, or I am trying to sort something out for myself first, or I am having a fit of pique.
 

Change things up - tell folks when you are up for company, if fresh faces help you at all. If I am up to making bathroom trips, I use that to my advantage and change the scenery. Sometimes I will make the morning trip and then retire on the couch. That night, when I make my last trip, I will end it in the bedroom.

Brain play - Got a book you always wanted to have time to read? Heard of a subject you always meant to research when you had the opportunity? Is there a neat but maybe useless-in-daily-life skill you wish you could develop? Video games are one of my favorites here (I less-than-three PopCap games!) and they usually take minimum to moderate mental acuity. I bought my first Xbox right before I had my tonsils removed. It was one of my best calls ever! Volunteering for phone work is a great idea! If you are a mind for it, this is a great time to work on skills like meditation, creative visualization, focus and concentration...


Ask for help - when people say "If you need anything..." let them know that you do. Even if you are not comfortable asking for something big, like babysitting, maybe you can ask for them to bring over a movie your kids have not seen, pop some microwave popcorn and turn watching TV with the kids for 90 minutes into an event! 

All my best for your speedy recovery. This sort of thing can be so much more taxing than a lot of lucky people will ever know.

Thursday, August 19, 2010

Helping Kids Understand Differences


(via a great blog: FWD/Forward (feminists with disabilities), a really great resource for information and fellowship)

I really liked this article, I think it gave some great advice and I would like to add some of my thoughts to it.

  • Remember that the disabled person you or your child is curious about is out doing their thing: shopping, working, whatever. Keeping that in mind, I believe it is okay to say something like, "Hi! My child is curious about your cane/wheelchair/helper animal, and I don't know much about it, myself. Would you mind chatting with us about it for a moment?"
  • No one is obligated to educate you,  we are not required to act as representatives of X population on demand, so be graceful if your request is denied. We are not your "teachable moment."
  • It is also okay to say "I do not know a lot about that, so we can look it up together when we get home."
  • Teach your kids that helper animals are not pets, and should not be treated as such. 
  • Talk directly to the person, not their aid, unless they or the aid indicates otherwise. Sometimes folks will talk to the person pushing my chair about me rather than to me, and that is indescribably rude.
  • Do not use disabled people as an object lesson. Seriously. In a store, I heard an adult tell a child, "You will be in a wheelchair, too,  if you do not learn to look before crossing the street!" Do I need to say that this displays an incredible lack of decorum or social awareness?
Do you have anything else you would like to add, or ask? Feel free to do so in the comments.

I am working on a couple of other posts, and hope to have more up soon. Thanks for stopping by!