SmartAss ProTips: Your Med Backstory

I want to have some resources here for you to use if you want or need them. While writing a piece on Go Bags, I realized that I had not talked to you about putting together a basic medical summary. This is the first thing you want in a hospital/medical BugOut/BugIn bag, or any travel bag for that matter.

Nissi (a black pitt) and Lucky (a tawny Chiwowow) keeping the neighborhood safe by sniffing a suspicious tree.

We will get into what Go/BugOut/BugIn Bags are, why you may need one, and a guideline of things to consider when making one. But before that, and Go Bag or not, you should have a MedStory!

MedStory is my own term for a unofficial medical history. Anything written my you will be considered unofficial - remember, patient reporting is considered the least reliable source of information around by docs, etc - but that was before "fake news." 

Even if you are not doing the whole Go Bag thing, you should do this. Even if you are healthy, you should do this. Keep a copy in your bag, in your car... You know your life best, so keep it where you know it can easily be found in an emergency. Since this will be too big to fit in the typical wallet, a note near your ID that indicates where your history is stored could save your life or the life of someone else if you are a organ donor.

I am going to give you what I think would be useful, and you can use or change it as you see fit for you and your family. We are going to cover information personal, medical, and medicinal. If you have a suggestion to add, please comment below and we will all benefit!

When you write your medical summary, imagine the conversations you normally have with medical professionals, only this time they need to know and you are unconscious with no family or friends present. There is a lot of information to think about here. You do not need to let yourself be overwhelmed by it. Take each suggestion one at a time. 

Ideally, you will have a summary for each family member. Even if you are around for your spouse, kid, or parent experiencing medical distress, this stuff is stuff you want to just hand off and not worry about - you will have enough worries.

Start with the basics: your name, address, phone numbers should be at the top. Another very important piece of information is your emergency contacts: their names, addresses, phone numbers. Who is your next of kin? Who is authorized to receive and act on your medical information? Do you have Advanced Directives (also called DNR orders). Do you have a medical power of attorney? You should have a copy of that in here, along with a notation of the location of the original, should it be necessary. Are you an organ/blood/marrow donor or on a registery?

While the rest of your medical information is covered below, next you should list your allergies, whether you think they would be an issue or not. Example: an egg allergy could really mess you up if you are given certain vaccines. So list them all is my advice! Make a note of each allergy & severity. Iodine makes me itchy, but penicillin will kill me.

You also need to mention any conditions, illnesses, or whatnot. Some people will list psychological diagnosis, and they can be important, but others are not willing to disclose them without establishing, personally, that it is pertinent and that they feel safe doing so. Sometimes an illness can be figured out by the meds you take, but do you really want people guessing at that moment?

You also want the names, addresses, and phone numbers of any health care practitioners you are currently seeing or have seen recently (last couple of years). If you have seen a specialist, you will always get asked why you saw them, so list that too (example: saw a pediatric gastroenterologist for stomach pain that resolved on its own or a physical therapist for SI joint dysfunction that improved with a completed course of PT). 

Now you need to detail what you are normally putting into your body. List any over the counter (OTC) or prescription medications you take, no matter how innocuous it may seem to you. If you take ibuprofen for occasional headaches, they say so. Please keep in mind that many prescription medications are used for more than one application, so list the reason you are taking it. Also list any herbal or homeopathic intake. 

I want to say if you are taking anything illegal, you should put it here because sometimes your docs really do need to know, but you have to make that call for yourself. 

So that is a good start. I will update this article as experiences or conversations make me wiser. If you have a tip, let us know below! I am considering making a Google form or something, what do you think?

ObamaPhone or Indiana Lifeline Assistance

So I received my "ObamaPhone" application in the mail recently. I know there is so much to talk about right now, but since I have this in front of me and there is a ton of false information and ignorance about this particular subject I think this is necessary. Also: I want to contribute to the works that actually help people on occasion - this blog is not just for me sounding off about things that are wrong.

Picture of the flyer that came with my application. I wanted to show you the application, but I could not come up with a way to show you, Gentle Reader, what I wanted to show you without displaying personal information. 

They are cracking down on fraud and abuse on both corporate and individual levels. Do not falsify anything on your application.

Let me say right now that there is nothing wrong with needing a lifeline phone. They will only ask you about how you qualify, not about how or why you believe you need their phone. Even if your situation is okay but perhaps subject to cataclysmic change it is something you should consider. Maybe your need is obvious and undeniable. Maybe everything is fine today, but the finances are out of your hands. Maybe it will only take one big couple fight to find you in desperate need of a phone. Maybe you are at home taking care of a parent that uses access to cars, phones and whatnot to control you and your business. Only people that could really need one are even eligible, so do not let internalized classism keep you from help you need no matter why you need it. 

My application came to me though my health coverage. I am disabled so I have the state's health program. You can see if you are eligible for Indiana's Lifeline Assistance program here at Safelink. As with all things "free" it comes with ad offers and such, but you can opt out of most of them. But I am getting ahead of myself. 

You can apply straight up at the website above if you do not receive a pre-approved application in the mail. (Note: that approval only lasts a few days, so use your application right away if you receive one.) You can also apply at your local library. If you are having extreme trouble, you can apply over the phone, but they do save that for folks having trouble with the process.

The application I received is in English on one side, Spanish on the other, and I think they have other language options at the web site. All I had to fill out was my name, address, last four Social Security number digits, and a contact phone number if you have one. There is also a box to check if your address is temporary. 

Next you pick your plan. The choices are 68 minutes a month, 125 minutes a month, and 250 minutes a month. Each plan comes with different options. The most important one is that the 68 and 125 plans have roll over/carry over minutes, whereas the 250 plan does not. The first couple of months have bonus minutes, and my offer included free calls to my docs even if my time is used up. Speaking of, you can of course buy SafeLink cards to extend your time if you have used it up for the month.

Once you get though that, you have to swear under penalty of perjury that you belong to the plan they believe qualifies you and a handful of other statements like that a qualifying household can only participate in the plan once. If you have trouble reading small print I definitely recommend using the website so you can use your browser options to size the text to your comfort level and ability.

That is it. You can fill out the paper application, go online, call their question line, fax it. As my own application progresses I will update this article. I am happy to say that the process seems to be fairly easy so far. 

Updates will go here. Corrections to the above, if needed, will be added where appropriate and clearly indicated.

• This process immediately showed itself to be a government program, in that it is difficult to navigate in ways that only the government can produce (and I mean in general, no offense to the current administration).
• I filled out the paper application so I could walk through it in this article, but my plan was to go online to file. However, the first thing Safelink wants is your "enrollment ID." Guess what? There is no such thing labeled on the application. There is a member ID, and promo code, and a bar code, but no such number labeled.
• My call to the help number at the bottom of the paperwork was promptly answered, filling me with false hope. The support personnel on the other end of the line was difficult to hear, and stuck to a script which did not answer my question at all. At one point there was an indication that it might be my insurance number (my qualifying program), but that is also used as my "member ID" and was not usable as my "enrollment ID." So that was a 14 minute exercise in futility.
• I could not start a fresh application because their web form would not accept my hyphenated last name. Later even the tech support agent helping me had trouble and even asked me if I had changed it on my government paperwork. (Yes, I did, sexist coder that wrote this form, I did.)
• Next is my call to the help line listed on their web page. They have separate numbers for account help and tech support. The line is automated at first and is designed to help without connecting you to a real person. I needed a live person. It took two minutes to get connected to live help, which is not bad in my experience.
• Again, the script given to assist customers was almost the opposite of help. It took another thirty two minutes to suss out that the only way to get past the lack of "enrollment ID" and the last name business was to apply over the phone. Now, the person I actually dealt with was heroic in trying to stick to the script. She also actually wanted to and eventually did help.
• At one point I had to give the "I have worked in tech and tech support, I would not be bugging you if anything I could try worked!" speil. 
• It was assumed I wanted the 250 minute plan, the others were not mentioned.
• Applying over the phone is tedious, repetitive and irritating. If you can use any other method, I recommend quite strongly that you do so.
• So now the wait is on! 7 to 10 business days should produce an Indiana Lifeline Assistance handset...

E-cig/Vaping Slang, Part One

If you follow me on various Internet over-sharing sites (micro/blogging places), then you know I am actively switching over from smoking Djarum Special Cigarellos to e-Cigarettes and mods. It is working, and although I have not completely made the switch, I am already seeing benefits and continue to pursue a complete switch over. The vaping scene can get quite confusing to folks new to it, because the scene already has a large vocabulary of slang and code. I want to help with that. 

Why do this here, on a disability, politics, and pop culture site? Because I think that it is important. Because I am personally using various vaping devices, with my start in them being in an interest in better health and not dying of various smoking cancers and other ill effects. Because I think it is important. Because I think it is a scene that could greatly benefit me and other folks with disabilities. Because I think it is an especially good idea to switch particularly if you are of ill health or malfunctioning immune systems. Please understand that these points are also my own opinion and I am not a medical professional.

So here are some random eCig/Vaping words/phrases/ideas with their meanings. I plan to do some more later. This is in no particular order. Feel free to offer corrections, additions, and comments below!

eJuice - this is the center of the Vaping world: the liquid used to create the vapor inhaled by Vapers.

Frost/Ice/Cold - every eJuice labeled as being cold or cold in some way usually means that it contains mint (rare) or menthol (common) flavoring. This is just as important if you are looking to avoid it as if you want it!

Spinner - a spinner is a battery with voltage control input manipulated by a marked disk on the bottom of the battery. The marks are usually on the body, and you change the power by turning the ribbed (usual) disk to the desired mark on the body. While the marking methods can differ, this always means that voltage control is changed by that "spinning" disk.

Analog - a typical cigarette product.

Vape - to vape is to inhale the atomized vapor created by eCigs and modes. It is to eCigs as smoking is to analogs.

Vaper - an eCig user. Also: a label worn with pride and with a resistance to the status quo of nicotine delivery.

Vapor - the atomized mist created by eCigs and Mods.

Mod - a vaping device is more than a decorated battery. Sometimes the actual battery is a separate product, contained within the mod. Mods are products that have more finite control over your experience, may have digital displays, and can come in very utilitarian or highly stylized models. Mods can also refer to vaping set ups altered by DIY vapers. 

ProPatient: Shots in my Spine!

Recently I had steroids injected into my lower spine in order to combat pain and limited movement in my lumbar region. I have bulging disks, and one has gone so far as to tear and leak somewhat. This has been a problem for a few years, but recent MRI results showed that I know had arthritic and spinal stenosis changes in these lumbar beauties.

First, a picture of the beautiful fall colors in our yard to reward you for going on these jaunts with me:

I planned on more pictures, then the cold snap happened.

Those changes in my spine triggered a different reaction this time, and the lab coats decided it was time to do something else. We had tried habit changes, exercises, physical therapy, and I was having some temporary luck with a TENS Unit. A new, longer lasting but still probably temporary effort was determined to be appropriate: epidural steroid injections.

It has been a little while, and so far, so good. I now have a spot on my back that does not experience chronic pain, and it is amazing. I am really happy with it so far and hope that the change hangs around for a while. Since I have a lot going on, I can not give a clean opinion on it like someone that only had this issue and then this procedure could produce. 

Prepping for the procedure  considered "outpatient surgery" by my medical system, was almost non-existent. If they offer sedation and you want it, you have to follow that non-eating/drinking thing. I have seen so many variations of that damned rule, and so many hospital staff breaking it that I have little respect for that blasted thing. I did take their twilight this time, but I want to learn more about how this is done and will probably avoid it the next time so I can share that with you.

The only things you need to bring are your patient bag, boredom toys, crafts, reading, and a driver. Plan on taking it easy for a day or few, depending on how this sort of thing usually alters your general well being and stay away from lifting heavy stuff  or having to sit in the same position for a few days.

The folks that worked on me did not even need jewelry removal, except if I had body piercings in the area that was slated for imaging. Everything was professional and quick. 

I had the procedure on a Friday, they called Monday to check up on me, and I see them in a month to review how it went and whatever we need to do next. I am very happy with it so far, and only if this is very short lived will I consider it not worth the effort. Right now I am irritated we did not do this sooner, and bugged that it is not a permanent solution - both only problems because I am happy with the result.

Self Liking Media

Or: Like Me! Like Me! Like Me! I have opinions. Let me show you this on on Self Liking Media. Enjoy, Gentle Reader. 

I take in a lot of content on the internet. I watch YouTube videos. I have a lot of podcasts I listen to on iTunes. I use (or have used) Spotify, TuneIn, Pandora, Netflix, Vimo, Hulu, Last.fm, Bandcamp, Mixcrate, Stitcher, Blog Talk Radio, and Ustream just to name a handful. I use web site media players, game site videos, social justice media wherever I can find it.

What I am saying is that I have a lot of time where it is difficult to do anything, so I consume the content of others. I have even made a tiny little bit, so I have an idea how hard it is. As I have talked about here before: I have no problem letting folks know I dig their stuff with a plus or a like or five stars or email or whatever. I think it is (the definition of) the least we can do for those folks trying to inform, entertain, and/or educate us. 

The best creators never tell you how to feel about their creations. You should be allowed to experience it on your own and form an un-beleaguered opinion. Like something or not, you should have the ability to form that opinion based on the media itself. You should not be inundated through the piece to form an opinion you do not have yet, or badgered to change a non-glowing opinion at the end. 

Mea culpa: I have been guilty of the "like me!" mess, but I will not anymore. You get to decide what you like.

But if you put your stuff out there on a system that has an opinion system, then you have voluntarily agreed to letting people voice their own opinion on that system. I respectfully address that you get over it, or get off of those systems. YouTubers and Facebookers and iTuners and whatever: quit telling me to give you a good rating and spend that energy into your project and make it even better.

Now, contrary to what you might think, I am not dogging everyone that made something on the Internet ever and then asked you to dig it. There is a one word cure to this: if. Well, you know, and variations of it:

• If you liked this video, please remember to hit the like button. 
• Hit the subscribe button if you like it so much you want more.
• Did you dig this G+ post? Let me know with that +1 button, okay?
• We work a lot on this podcast. Want us to keep it up? Five stars will let us know! If you hear an issue, please give us a heads up!
• We are able to get help with equipment and stuff based on our like counts. So please help us out with a good review - you listened to the whole thing, so you like us, right? 
• Enjoy our skits? Let us know! There is a donate button, too!
• Please use our comment section to give us accolades, guidance  opinion, whatever comes to your head for us. Well, almost whatever - behave! Check out our posting rules for questions.

For all that is good in this world, quit telling us to like your stuff and make it likable instead, okay? Okay. Thanks. Look, the creators I am addressing are giving out mostly free content: we are predisposed to like you. "Yea, free stuff!" said the Internet. Then we spend time on you, further prepping us to like you. People do not like to be wrong, so we are going to want to like you the longer we spend time on your content. 

I know, there are trolls, but they are actually a tiny fraction of people on the Internet. They are just the loudest because it is easier to shit on something than to hold it up. Sadistic lulz are no longer witty retorts, now they are usually just the flatulence of the bored. 

On perks: if you give a perk to the best opinions, good for you. But I think it does a disservice to you and your fans. How can you know what they really think if you have some raffle prize for shining reviews. A lot of the folks that hound consumers about it never give a breath to telling them what you actually think, they just want the like/plus/stars. So if your content has a problem like a faulty/misplaced light or bad levels or misinformation, who is going to tell you? It should be your fans, but you have them giving prize-eligible reviews instead. I think that can cause content creators more harm than good. You know your content's needs better than I, so take that as you will.

Down with the phenomena of Self Liking Media! Remember, you can show me some love below if you like what I do:

Stealing Memories

In the middle of a bunch of personal drama, a package arrived for me. The package had a t-shirt for a web site and YouTube series I was supporting until the middle of said personal drama. So I was in a quandary about what to do with said t-shirt. Do I throw it away? Keep it? Give it to one of the kids and get reminded of the drama every time they wear it, but give the money I spend some use? 

Mentioning my quandary created what I should have known, given hindsight, yet more drama. I ended up refusing the offer to refund my money. Here is why: not only did I pay for the shirt, I _earned_ it. I earned it for watching every episode. I earned it promoting episodes. I earned it talking up the show. Least of all, I earned it by buying the damn thing. I was not going to let a damn social mess tell me any different, even as this guy tried to steal my memories.

Before you start to think that "stealing memories" is a bit dramatic itself, let me explain. People have tried to steal my memories before. It has happened to you. A person makes an exit from your life, and in the process tries to invalidate every good memory you have of them on the way out the door. Maybe they claim they were only friends with you to make a social situation easier  Maybe they say that they were only there because you give a fine blow job. They do their damnedest to sully or erase the good times, whatever fellowship you may have shared, the contagious smiles, the talking too long, the shared heartache - all of it they take a hearty piss on before they are gone. Now you know what I am talking about, I think.

I decided a couple years back that I would no longer let people steal my memories. If my brain held onto something pleasant, it was going to stay. This was when a couple we had considered great friends and part of our family was making their exit. On the way out, they were stealing what memories they could, and I just decided to not let them. Sure, they were gone shortly after, but I protected my good memories of them and kept them separate from the bullshit that was happening right then. I would remember the bullshit too, but separately. They could retcon their own lives, but not mine.

Do not let assholes make you forget why you thought of them as decent folk. Do not let people erase your good times. Do not let them take away the rough times you shared.

Do not let people steal your memories.

Oh, and the t-shirt? It is going straight into a keepsakes box, unwashed and unworn.

Here is to 2013!

Here it is, 2013. The world did not end, and JibJab are still doing their thing. I realize I have some priorities to get straight and some habits I need to reestablish.

Do you do New Year's Resolutions? I do, and I have found some success with the following guide lines I want to share with you.

• Keep it short: no more than 10 resolutions, but you are better off with about 5.
• Keep it short, I mean it: no long complicated resolutions.
• Break it down: "Get healthy" is a terrible resolution. "Drink 2 bottles of water a day" is much better. "Exercise" is terrible, too! "Start walking for 10-20 minutes/once a week" is better.
• Keep it handy: whether you use an resolution app, or just a text file on your laptop, keep your resolutions where you can reach them.
• Check in: on a good day for you (1st of the month or whatever), take a look at your resolutions if you have not otherwise. Set an alarm or calendar reminder if that will help!
• Please make a note of it:  and make a note of where you are regarding following up on them. If something got in the way, like an illness, note that too so you will not feel hopeless later when you see little progress for that month.

Once I have my resolutions ready I will share them with you. These are the things that help me. Do you have a good tip or idea for New Year Resolutions? Please share it below!

On the Word "Lame"

Transcript below the break.

Thank you to everyone that has sent me notes about this video. Your thoughts are greatly appreciated by me.

It is nice to be back.

Things That Make My Life Easier: Gold Violin

So, I stumbled across the web site Gold Violin recently. Once I got past the fact that most of the pictures for their living aid devices involve old white people, I found a lot of useful stuff.

As with all reviews, unless otherwise stated I bought the items in review myself. As a guard against being unduly biases – I will always let you know if I receive an item at a discount or free to review!

Agenda Pill Box – This is on sale for $8 from $40 – I think part of that is that the calendar inside is old. That did not bother me, I do not need another calendar, and I bought a small flat notebook to slide into that section in case I do need to write something down while I am taking my pills and do not have anything else near by. Here is the description from their site:” Closed, it looks like a handsome appointment book.  Opened, it's both your calendar and 7-day pill organizer.  Each daily compartment holds up to 4 doses, keeps your medication secure and slides open easily when it's time to take your pills. 8 x 5 1/2 x 1 1/2.”

I really like this pill carrier. Now I only have to organize my pill dosages once a week instead of every day. I can remember to add the over the counter stuff I need to take daily with ease. The daily containers have four slots, and my only gripe is that in order to make sure the top does not slide off – the opening is restricted to three compartments on one side, and one on the other. This means that I have to open, close and open each one in the process of filling them. Okay, and I wish I could have gotten it in black.

My Meds Ledger: “My Meds Ledger keeps prescription information organized and at hand in case of an emergency, with room for up to 12 medicines. Both fold to the size of a credit card. Magnetic closure. 3¼”Wx2¼”H.” They also make a Login Lockers, with the same format – for keeping track of web sites with log-ins and passwords. Normally $5, as of my writing it is $4 on sale.

I like this item, but care should be taken when storing magnets in your wallet or purse. As with all small record keeping items it may be tough to record your information legibly, but that goes with the territory.

Up next are the Walking Stick Accessories - Corded Wrist Strap.I bought two of these, gold for my clear Lucite cane and black for my black fold up cane. These are also available in red. They are damn useful for when you need your cane hand for getting into your wallet or whatever. I wish they were just a tad longer, though, for when you need to slide it a little further up your wrist, or get it off your wrist faster. After a while, the elastic wrap around the cord stretches out a bit, but for now, mine is still okay. About $7.

I bought two types of sunscreen:  Sun Protection in Spray-on and Insect-Repelling Styles. “Waterproof Topcoat covers the areas most exposed and most often ignore - your scalp. Non-greasy, protein-rich formula is SPF 20+. Sunscreen with Insect Repellent Lotion combines SPF 25 with all natural insect repellent. Safe and effective, it’s enriched with soothing aloe and Vitamin E. Both formulas withstand salt water, swimming pools and sweat up to 80 minutes.” Regular price was $10.00, as of writing these are now sold for $5.99.

I bought both of these, and am very pleased with them. They do not wear or sweat off quickly. Now, you hair looks a little greasy where you use the scalp spray – but that is a hell of a lot better than the painful red peeling you would get with a bare scalp. The bug repellant is effective and the scent is not as people-repellant as most insect sprays/wipes can be. It also seemed to be well-tolerated by my DEET allergic friend.

For my husband, I bought Foot Crème: Heel Rescue. “Thick, luxurious cream penetrates, moisturizes and repairs dry, cracked skin, leaving your heels feeling soft, smooth and revitalized. Contains CoEnzyme Q10 that boosts the body’s natural ability to renew itself. Non-greasy formula. 16 oz. jar with pump dispenser.” The regular price is $9.95; the sale price is $5.99.

I bought the Heel Rescue for my husband, and he appears to be very happy with it. He suffers from bad feet, and has for years – but they seem to be getting better now: more smooth, less calloused, more appealing. I have used it on occasion, it seems to do a decent job.

Delivery was quick, e-mails kept me on top of the status of my orders with little effort on my part. One negative thing is that the web site is not always user friendly. A solid example is this: the site allows you to build a wish list, but finding it later is not intuitive. In general, my experience with Gold Violin has been very positive. I have placed other orders since my first one and remain well pleased.

ProTips: Skimping Without Going Without

Times are hard all over (mostly, and if you are part of the USian 1% that is getting richer, you probably are not reading here). Everyone tries to save money. Here is some (sometimes hard earned) advice for skimping without going without. Feel free to add your tips in the comments!

If your income is desperately low, look for help. There are programs out there specifically designed to help you, including help with heat, electricity, prescription meds and health insurance. Do not be ashamed to make use of the tools available to you. This is their purpose! If you are doing okay, donate some money, resources, or effort to the same.

Now on to the tips. Your mileage may vary. Pick what works for you and disregard what does not – that is what this is for!

Never go cheap on feminine hygiene products. Never go cheap on diapers. Exception: advice from a trusted source. Not only do you spend more money when you have to go out and get the good stuff due to product failure, but you usually find out via embarrassment and ruined clothes and more expense.

Some generic products are differently packaged products from brand name production lines. Do your research and find where you are spending more for nothing.

Consider growing your own food when and where you can. Even though my garden cost a couple of hundred dollars to put together initially (including fencing – ouch!), we still saved almost $400 dollars in grocery bills that year. With the initial set-up out of the way, we save much more. Try to grow from seeds or the smaller starter plants – these get more expensive the more developed they are when sold. Consider potted plants or Topsy Turvy tomato planters for apartments.

Look into local garden/DIY collectives. Not only can you save time, money, and effort collaborating with nearby folks, but it is good to have connections with people that have the same concerns as you.

Make your own sex toys! Use your common sense, research and think - particularly with insertable toys. Floggers, clamps, paddles, a lot of these can be made on the cheap side, and you can make them exactly the way you want them. DO NOT MAKE YOUR OWN BIRTH CONTROL OR SKIMP ON BC. Read review sites like BDSMLab to make sure you are getting what you want for your dollar.

Trade favors with your family and neighbors. Some folks in our neighborhood trade garden goods. Others trade babysitting for lawn care. Find out what other folks need and if they can help with your needs. Make sure everyone feels treated fairly. It is better to agree that a deal cannot be made than to make a bad connection.

Become familiar with Lifehacker, WikiHow, and other DIY (Do It Yourself) sites. Also look into home-brewed shampoos, beauty products, cleaning products. Green environment sites often have cost saving benefits too.

Weigh what you are spending and where you can cut. For example, we thought we could save money by taking our recycling to a drop off point verses paying to have it picked up. This was true until gas prices started to rise. Now the cost of curb pick up seems blissfully cheap compared to taking it ourselves. Plus we no longer have to store it longer than two weeks at a time.

Save up your errands to run all together. Or, alternatively, run them on the way to or from work or school. For one item stops, pass your cash to someone else that is going if they will pick up that one thing for you.

Be careful buying in bulk. Many manufacturers have caught on to the bulk craze and you may not be saving as much as you think. The same is true for some thrift stores. Tip: thrift stores in upscale strip malls are often more expensive than the same store and item in a more economically stressed neighborhood.

Sign up for e-mail lists from your favorite retailers. Decide if handfuls of useless e-mails are worth the occasional one with that can’t-pass-it-up bargain. Your time is valuable; you could be doing something else with it – so choose wisely.

Check out consumer web sites, particularly big ticket items like appliances, vehicles, etc… In a pinch, look at Amazon.com for the product and read the reviews.  Consumer Reports is the gold standard, but is subscription based, with annual and monthly options. There are plenty of free review sites out there. Read the threads, if there is a Stan or sock puppet in there, usually they will get found out.


Look for alternatives that generate equal results. For some pants, blouses and sweaters I will use Dryel, but winter coats and such need to be dry cleaned to keep them in good shape and decrease the chance that they will need to be replaced.


Learn how to mend! Basic sewing kids cost very little, and being able to replace a button, darn a small hole, or repair a loose hem can save you a lot of money, particularly if you are part of a family. (Kids clothes are particularly prone to mending needs.)

Invest in a good stain remover – it is much less expensive than replacing clothes.

Do not throw away the circulars you get in the mail. Sometimes you can find good bargains on big ticket items like HVAC maintenance and roof repair. On the other end of the budget, $1 off of brand name cereal may not seem like a lot, but if you use one every week, that can add up quick. I also advise planning grocery shopping around store sales.

Put some of your saved money away for something fun, even if you feel like you cannot afford it. Even if it is a DVD for the family to enjoy, or dinner out, find something that pays you back in enjoyment for your time and effort. Being “poor” does not equal not having modern human needs. Recreation is a part of sanity maintenance!

Now you can share your favorite tips below!

Things that Make My Life Easier: Pill Card

I bought the Pill Card on Amazon, but it was sold and fulfilled by SplaceCo. I paid a total of $2.99 ($1.99 + very reasonable shipping).

The Pill Card is exactly what it says on the tin. Actually, it didn’t come in a box, but you know what I mean (or at least TV Tropes does!). Delivery was timely. While it seems that the Pill Card comes in several colors, there is no option to choose color when ordering. Mine is brown.

Sticker says:
Re-Pillable Card
A Wallet Pill Card
Place over the top
Credit Card, it fits!
Pills are a wallet reach away.
Read and remove.

Note: I can’t see a reason to remove the sticker, which is a good thing, since it is a really stuck on there sort of arrangement.

At 2.25 inches tall, 2.25 inches wide, the card is flat, and the compartment sticks out about .25 inch. Most OTC NSAIDs I tried worked fine. An 800mg ibuprophen is a tight squeeze, and a CitriCal Petite (which must be named ironically, I think) does not fit. There is a divider inside the compartment, so you could store, say, aspirin on one side and your Rx med on the other.

This product is useful, but I use a bifold, zippered wallet rather than a male marketed bi- or tri-fold – and the Pill Card works much better in a tri-fold wallet. So I gave it to my step-dad to use.

This is a solid product. My only concern is whether the plastic would grow brittle over time, or the compartment hinges might give, but at the price you can probably keep a spare handy if either of those items becomes an issue.

More information can be found at Repillable.com.

SmartAss Review: Pill Glide

Just recently I had to go pick up my prescriptions, and while I was waiting around, I saw this: Pill Glide. It was in my local CVS, available in strawberry and grape flavors. This company also produces FLAVORx Pediatric Flavoring – for making your kids’ prescription liquid medications more bearable. Pill Glide comes in a one ounce spray bottle, which advertises as being 200+ sprays (each use is two to four sprays).

This essentially functions as a flavored, sweetened pill lubricant. My theory is that you might also be distracted from the discomfort of swallowing a pill (if that does, indeed, bother you) by the terrible flavor or artificial sweetener. I have no trouble taking pills most of the time (if you do not count the simmering resentment that I must do so), but I thought this might prove of some value – to recommend to folks that do have trouble, or to have handy when I have some plague with sinus drainage.

The directions are fairly simple: “Coat with Pill Glide (2-4 sprays). Place tablet or capsule on tongue. Swallow immediately with water.”  This is not supposed to be a substitute for having a drink handy. A lot of us dry swallow when convenient, or when we either have to or go without our meds, I know. I also know that this is not a good thing, as most pills are designed to be taken with fluid. I do not know if this would help with that, but my guess would be that it would. However, if you were stuck with Pill Glide and no drink, I suspect that it would work.

Pill Glide ingredients include the following: purified water, glycerin, sorbitol, xanthan gum, neotame, natural and artificial flavors. Buffered with: sodium citrate and citric acid. Preserved with: potassium sorbate, sodium benzoate, and propylene glycol. Yes, this has caused my spell check to tremble with rage! It is a selling point that the product contains no sugar, no dyes and no drugs in and of itself.

I think that it tastes terrible, but I hate artificial flavors and sweeteners, so I can hardly be fair. Honestly, it does taste far better than some pills I have gotten stuck in my throat, or pills I had to cut and therefore tasted when taking. So you will not catching me just spraying this on my tongue for the taste of it, but if I have to cut pills up, or my throat is already sore, I may very well use Pill Glide to make up the difference.

Surprisingly, I did not feel the edges of the pill as I swallowed, which I usually do. So this throat lube may have actually made it a little easier to do. Now, this was a large ibuprofen, 800 mg. I figured that was the largest I had right now, and probably one of the more commonly used prescriptions and therefore a good landmark. And I could use it right then.

My youngest daughter, 11 years old, said that although she could still take the half pill she takes at night, it was not as bad. The next two days she asked to use it with her nightly half-pill – so I call that a thumbs up. Our 14 year old young lady said she would use it if she felt the need and she does not mind the taste. The D man said that “it tastes like strawberry Jolly Rancher,” but did not notice a difference in the actual act of pill swallowing (only very large pills bug him). Last, but not least (I think he thought he would get out of it!), my G man said that it was indeed slick, with a sickly artificial taste to it, saw no difference (and usually has no difficulty).

Considering the entire house – only one person liked the taste, but we all saw how Pill Glide could be handy if one was having difficulty swallowing pills. So our final verdict is useful, not very tasty, but still better tasting than the tastes it can cover up. So thumbs up for Pill Glide.


Pill Glide’s contact information:
FLAVORx, Inc, MD 21046
http://www.pillglide.com
http://www.facebook.com/pillglide
1.866.370.2337
support@pillglide.com

Pill Glide’s FAQ is here. I bought mine for $5.99 (I think) at CVS. I bought strawberry, but they also had grape. It is also available at Amazon, in a handful of other flavors (strawberry, orange, peach, and bubblegum). Oh, and their homepage has a “live chat” option if you have any questions, but I cannot vouch for that because I did not use it. It did pop up and beep at me, though, so I assume someone was available if I wanted to chat.

Blog note

Haha! I have broken the “Upcoming” curse. Previously, almost every time I have posted about what I have in the pipe for this blog, I end up not posting for a while. So I was nervous about doing so yesterday. And yes, I did get a car, and I am very happy about that.

On Social Justice Blogging - Jumping in the Pool Head First - Advice

I have thought long and hard about trying to become part of the social justice blogging community. As a reader/lurker over the past handful of years or so, I have watched the public side of some very ugly shit (ableism, racism, fat hatred, identity policing…) going down on various sites. I assume that what went on behind the scenes was much, much worse. I also figure that any community is made up of people, and sometimes people are like that. 

Yet, I still have things to say and a desire to say them – even if they are only ever seen by some family and friends. And you!

I think that it is inadvisable to trust someone just because they share a common interest, even when that interest is supposed to be the “tide that lifts all boats.” So I will make what connections I can based on personal observation rather than assuming that someone with an SJ cause is going to know, understand, or care about what I hold dear. I expect to be treated the same.

I know that I will be distrusted by a lot of folks because I am white, and I get that as much as I can. I am also bisexual, disabled (although I pass occasionally), born and raised lower class (not so much now, but that stays with you in ways that are surprising and disturbing), pervy, nontheistic, and poly. This is not an Oppression Olympics entry; I just want to lay it out there here and now. Where I am privileged I will endeavor to be the best ally I can be and promise to improve at each opportunity.

At home, I have a saying, "The reason we do not argue when I am wrong is because I think before I flap my jaw and when I am wrong I apologize and shut the hell up!"

What is your advice for speaking your piece with strength, compassion, and integrity while weathering whatever storm may blow?

I may be late getting to comments today. I have a physical issue that is kicking my metaphorical ass and I am going to go look at a car today. Cross your tentacles if you care to do so - I could really use a car! This is the reason for the super early post and my anticipated absence.

Here is a sneak peak at what I have cooking for you, Dear Reader: a vitriolic crip rant I wrote one lonely night, a review of a product called Pill Glide, some thoughts on blogging while avoidant, some more Things That Make My Life Easier (with something catchier to call it, perhaps!), my experiences with Moore and Me, some neato links, and a small series of articles detailing my politics and why I think they are the correct choices for me.

SmartAss Commentary: Niaspan Commercials

Niaspan

Oh, how I loathe these commercials for Niaspan. Have you seen these? Wow, these pieces of passive-aggressive, sly, guilt-ridden pabulum are just stunning.

Here is the “brother” version. There is at least one more, but I cannot find a link for it. It is not quite as bad, but still not good. Scratch that, there are three total, and they can be found on the Niaspan homepage here.

I find these commercials to be full of coddling, wheedling, coercive, bullshit. It is hard enough to manage a chronic illness/injury/disability – we really do not need to be badgered by our friends and family. I think the idea that these are “interventions” kind of trivializes the actual purpose of an intervention, you know – giving a loved one a chance to stop and think about what they are doing to themselves and the people around them. To let them know that they are loved and supported, and that this will still be true if they try to change their lives for the better. It is usually reserved for exceptionally destructive behavior.

Take the brother commercial – the speaking brother is chastising the audience brother about the fact that he is not taking Niaspan. Never mind the facts that the brother has made the diet and lifestyle changes that are necessary for his condition. Oh, no – he isn’t doing enough because he isn’t taking this pill! What if he is already taking niacin? Or what if he has a contra-indication, like liver trouble? The speaking brother apparently does not care. He has decided what is best, and damn anything else.

The daughter commercial does not specify what other changes the audience dad has made. But she is going out on an awfully long limb for something that “might” work.

The sister commercial is mind boggling. “I know one more pill… I get it, I do,” No she does not, or she would not follow that with, “I am not taking ‘no’ for an answer.” The gall on display is stunning. Of course she knows best, how it could be any other way is beyond her grasp.

These commercials are demeaning to health care customers. They play into the all-to-common assumption that we, as individual patients, are either too stupid or too lazy to consult with our doctors, do our own research, and make our own decisions.

If you do have a friend or loved on that is dealing with cholesterol issues, it is totally okay to offer your support. As with other health issues, save your advice for when you are asked for it. No, we do not want unsolicited advice – by definition. If we wanted it, we would seek it out and ask you.

While looking for links to the commercials themselves, I found some folks that despise this almost as much as I do at CommercialsIHate.

Niaspan on Wikipedia is here. (This entry is actually about Niacin. Niaspan is apparently prescription strength, time release Niacin.)

Things that Make My Life Easier: UV Monkey

Here we are again, with another installment of “Things that Make My Life Easier.” Some people with SLE/Lupus are mildly to very photosensitive. I am one of those 'very'  people. Some medications can make you photosensitive or more so if you were already dealing with that situation. I am taking one of those medications.

Recently I was gifted with a UV Monkey, from ThinkGeek.

This is a small, round device with four colored panels around one circular central panel. The whole thing measures barely an inch and a half across. It can be put on a key-chain, but since I am unsure about how durable or fragile it really is, I keep it in a pocket in my purse.

The colored panels correspond to different UV Index ratings, and you are able to determine the reading by matching one of those to the middle circle, which changes color to let you know what the rating is in your current location. Level 1 is a UV Index of 1-2, Level 2 is 3-5, Level 3 is 6-8, and Level 4 is 9 – 11. Once you have been sensitive to UV light for a while, you start to get a handle on what your own particular tolerances are and how to manage them. I may do a separate post on how I manage, but I do not have any really nifty secrets (hell, my skin will burn and blister sitting in a car!).


I have only used this a few times so far, but I see the potential for it and it looks good. Cloudy days are the ones that screw with me, when I forget that UV rays are not blocked by clouds. Sigh. This will help me remember.


If you have photosensitivity, I recommend the UV Monkey if you have $9.99 (currently on sale for $7.99) plus shipping. In the long run, it is probably cheaper and definitely more comfortable and convenient than treating the sunburns, headaches, and nausea that can result from over exposure!


*Note: The UV Monkey is also useful for knowing when is best to charge solar devices.

UV Index

Things that Make My Life Easier: Online Rx Refills

“Things that make my life easier” was an idea from Amanda W., and she wrote about it at her home site, Three Rivers Fog. I read about her idea on FWD: Feminists with Disabilities (the site is still there, but is no longer producing new content, which is a shame and I will talk about that soon).

I think that the idea is a really good one, and I would like to lend a hand in helping to keep it alive. So here is my first PatientC: Things that Make My Life Easier!

I use a CVS. Our family has since we moved away from a really great family owned pharmacy. CVS has been convenient for us, and we have been pretty happy with them most of the time. I manage my own ‘scripts along with my husband’s and both our daughters. Unfortunately, that is a fair amount of pills, etc. Recently I have started streamlining our habits and trying to cut out time and effort that is ill-spent (relaxing or goofing off counts as time well spent, unless something else really needs to be done!). So I finally investigated the web site functions offered by CVS.

I could really kick myself for not doing this sooner! They offer prescription refills, transferring prescriptions online, and easy access to your annual Rx records should you need them. I was also able to set up my daughters Rx’s on my account. My husband had to set up an account to give me permission to manage his ‘scripts, but I do appreciate that they do try to keep fraud down.

So setting up the accounts and getting them connected was a bit fidget-filled, but it paid off almost immediately. When I log on to fill a ‘script, it is red if it is eligible to be refilled now, I check the box next to the ones I want, and then click the big red button near the bottom of the page. Depending on your insurance, they may be able to tell you how much it will cost before the next screen. The next screen you can enter when you want to be able to pick it up, just like their automated phone line refills. Once done, you receive a confirmation e-mail, and the stuff has always been ready when we came in to pick it up.

*Note: if you use their customer card for discounts and savings, you can manage it from the same log-on.

*Note: this service is not helpful for refilling prescriptions of controlled substances (painkillers, ADD/ADHD medications, etc…) as you have to deal with the physical prescription, but is otherwise very useful.

The following all have, or as best I can tell, appear to have, online refills available. Some of them also allow you to transfer prescriptions, get e-mail reminders, and whatnot. This is just a quick hit of places that offer similar services based of off a quick mental list and then a scan of their available services. Feel free to add more in the comments section, and I will list them here.

CVS
Walgreen’s
WalMart
Target
Kroger
Rite Aid
Kmart
Meijer’s
Tucker Pharmacy (used to be Tucker State Pharmacy) was bought, but is still around, but if it does have a web page, it is not under that name. Upon a Google street view search, they are still there, but are now a Tucker (Walgreen’s). So they have it.
BioScrip
Marwood Low Cost Pharmacy does not appear to have a web page.
Dr. Aziz Pharmacy does not appear to have it.
Marsh does not appear to have it.

SmartAss Protips: Puking

Puking, vomiting, upchucking, worshiping the porcelain alter/goddess/god, driving the toilet bus, Technicolor yawn, horking, chunder, hurling, blowing chunks, ralphing, spewing, extreme anti-peristalsis, spewing, barfing, rainbow gagging, heaving, retching...

We have a lot of names for it, and none of them are nice – because vomiting is never pleasurable (outside of say, a fetishist, but that is not the topic of this post).

Here are some handy tips for those days when food just won’t stay down. This is not your standard nausea battle guide, this is stuff that has worked for me, and may work for you! I had two pregnancies that were full of fail when it came to keeping food down, and it has come up (?!?) again as a new med had me face down on a fairly frequent basis. It took two months to fix the situation: I was hesitant to call, because the pain medication was actually working, the first time I called they assumed the problem was on the other end of my digestive tract, when the medication they prescribed for that did not work I spread out my dosage more evenly through the day and eventually found dosages/times that worked for me (and still had me at or under my allotted amount per day).

Important note: I say this again later, but I want to be clear up here -- this is my own personal advice for handling a bout of puking. If you have any questions at all about why you are sick, you should talk to your medical professional, if possible. This is not meant to be a substitute for qualified medical advice!

Let's get too it!

Put your hair back – ponytail, clips, pins, whatever. My hair is long, so it is definitely a concern when I am throwing down with the porcelain.

Have a tidy bowl – if my stomach contents are already unsteady, one sure path to a speedy exit is a disgusting toilet. So, keep it tidy or ask your partner/caretaker/aid to lend a hand here.

Protect the pretties – if you wear [edit - spelling] long necklaces, consider taking them off until you feel better, or cheat like I do: tuck them into your shirt or bra straps.

Pearly whites – always brush or at least rinse afterwards. You don’t need old food or digestive juices hanging out on your teeth. Post-puke teeth are gross anyway, and you do not need that reminder hanging around while you try to hold something down.

Find your balm – some folks swear by ginger, starches, or mint. I am a shortbread girl myself. Experiment and find what works for you. Ice cream works occasionally for me. My boyfriend swears by drinking a Coke to settle his tummy. Motion sickness pills can help, too, by the way.

Be prepared – if you feel queasy, and unsure of your ability to make it to your bathroom, there is no shame in preparing ahead of time. Keep a basin, bucket, or wastebasket handy. Think about how you want to manage afterwards: are you up to cleaning it out, or would you rather double bag line it so you can tie them up and toss them?

Listen up – pay attention to what your body tells you. Do not wait until the last minute to do what you need to do. This, coupled with the above, can help prevent a lot of accidents.

Get it over with – I have found that when I am dealing with a bout of antiperistaltic movement, sometimes it is best to just get it over with, rather than fighting it tooth and nail. Your mileage may vary.

Talk it out – if you have a partner, roommate, caregiver, aid, let them know what is going on. Do you want someone to hold your hair back, or greet you with a bottle of water when you are done? Have a conversation, and do not be ashamed of things you have little or no control over, okay? Early in my relationship with my husband we both caught a stomach bug so terrible we were both prescribed anti-nausea suppositories -- as you can guess, we worked through the awkwardness then.

Watch what you eat – keep an eye out for how things may come back up when you are chowing down. I tend to stick to soft stuff: pudding, ice cream, apple sauce, flavored oatmeal. You may want to stay away from other foods: popcorn (eck! Don’t ask!), hard chips like potato or corn, spicy foods (if it stings going down, it is going to be a bad scene when it comes back), big leafy foods can be unpleasant, avoid anything that usually upsets your stomach or is uncomfortable (spicy foods at or beyond your tolerance point).

Along these lines, if you don’t already – chew your damn food! Seriously, you should do this whether you are puking or not. Take small bites, and chew thoroughly. Do you ever watch people eat? Even when there is no time constraint, many folks eat like they are in a huge hurry. But when you are nauseated, the idea that a bite could get wedged in your nose is likely to encourage you to develop this good habit.

Water, water -- stay hydrated. Seriously, no matter how frequently you are vomiting, you must stay hydrated. Dehydration is one of the big problems with vomiting as with diarrhea. 

Knowledge is power -- if you have a condition that can be worsened by vomiting (diabetes comes to mind), make sure you know if you should do anything special to keep disaster at bay.

Doctor, doctor – it is always okay to ask your doc for advice and help with this issue. I recommend it, especially if you think that it may be a sign of illness, or intolerance to a medication. Some areas have nurses you can consult by phone. Your medical professional may recommend anything from ginger to an anti-nausea ‘script. Work with them to come up with a solution you can manage.

Have any tips? Feel free to share in the comments! Have a question? Go ahead and ask! Got an opinion? Check out the comment policy, and fire away!

Helping Kids Understand Differences

Kids learn by example to meet the unexpected

(via a great blog: FWD/Forward (feminists with disabilities), a really great resource for information and fellowship)

I really liked this article, I think it gave some great advice and I would like to add some of my thoughts to it.

• Remember that the disabled person you or your child is curious about is out doing their thing: shopping, working, whatever. Keeping that in mind, I believe it is okay to say something like, "Hi! My child is curious about your cane/wheelchair/helper animal, and I don't know much about it, myself. Would you mind chatting with us about it for a moment?"

• No one is obligated to educate you,  we are not required to act as representatives of X population on demand, so be graceful if your request is denied. We are not your "teachable moment."

• It is also okay to say "I do not know a lot about that, so we can look it up together when we get home."

• Teach your kids that helper animals are not pets, and should not be treated as such. 

• Talk directly to the person, not their aid, unless they or the aid indicates otherwise. Sometimes folks will talk to the person pushing my chair about me rather than to me, and that is indescribably rude.

• Do not use disabled people as an object lesson. Seriously. In a store, I heard an adult tell a child, "You will be in a wheelchair, too,  if you do not learn to look before crossing the street!" Do I need to say that this displays an incredible lack of decorum or social awareness?

Do you have anything else you would like to add, or ask? Feel free to do so in the comments.

I am working on a couple of other posts, and hope to have more up soon. Thanks for stopping by!

Wallet Card

Let's talk about something practical and useful. I believe that everyone, especially the chronically ill, should carry a wallet card. This card should have a condensed version of all your current medical data.  Sometimes you can pick up blank ones at doctor's offices, and some pharmacies offer them, but you can always make your own using a blank business card, or a piece of paper folded up to wallet size.

Off the top of my head, here are some of the things you should have on your card. If you have additions or changes to suggest, please leave them in the comments! Note: I did not include insurance information as I keep mine between my ID and my insurance card.

• Name,
• Address,
• Phone Number,
• Emergency contact name and numbers,
• Current doctors' names and phone numbers (include specialists you currently see),
• Allergies,
• Medications you take and dosages -- both Rx and OTC,  
• Equipment you use and implants you have, 
• Any tools you may need to communicate, and
• Conditions -- both diagnosed and suspected.

Take a moment to think of anything else a medical professional may need to know if you are in their care and unable to answer questions.  Whether you are in "good health" or chronically ill, you could end up in a situation where a simple effort like this could save your life.

Again, you can make your own if you want, ask at your doctors' offices or pharmacy, or you can look online. I found a service that offers both free cards and ones you can buy here. This site has you fill out the information and puts it in a card you can print out.

Additional solid advice on emergency identification can be found here. I generated over five million search results on Google using "medical emergency card."


Having a card like this is not only handy in emergencies, but also useful when you are filling out the dreaded new patient forms at an unfamiliar doctor's office. It will not keep you from needing to go over the information at, say, an emergency room visit, as they will sometimes discuss it with you anyway to see how you are doing cognitively.

Links and Advice

Here is the inevitable post where I ask for good links to visit. I will be going through the ones I have this week, and will post what I have that will be a good resource here. However, I do not lay claim to knowing the whole internet, and would be grateful for some suggestions for the blogroll.

Asking about this reminded me that I am a big ol' newbie at this medical/disability/able-ism blog thing, so if you have any pearls of wisdom, I would welcome them. Anything you have found invaluable, or wish you knew when you were starting out, or go-to ideas. Policy ideas you use/have used for similar sites would be great, as I have the barest outline of such so far.