Wednesday, November 21, 2012

Two Words

The following is a flare rant I wrote about a month ago, and then promptly forgot about because I was flaring. So here you go, and at the bottom I ask you for your flare advice.

Fucking. Flare.
Seriously. Thursday I missed my physical therapy, and that makes me feel about two inches tall. This is because it is low/no income and that means that someone else in my position or worse could have used that slot if I had been able to cancel earlier. This is a traveling teaching group, so when you miss an appointment not only could someone else have used the slot, but there are P/T students there that need to learn that are also going without what they need.
On the up side, they used the hour to learn more about lupus, fibro, and my upcoming wrist surgery and how all those things can impact physical therapy, not just for me but in general. Which is awesome! I have actually apologized to the students for being so complicated, but the lead P/T said to never do that, that patients in real life are always complicated.

I am going to talk to my physical therapist and find out more about how one can access low/no income therapy like this, because I think it is very important.
Hate. Flares. My physical ability goes out the window. I have a wicked Flowers for Algernon thing going on while I flare. It touches everything I touch, and I resent the hell out of it. Lately, though, I am trying to lean into experiences and really be there and understand, but flares just suck so god damn hard.
This seems to be a mini flare, which hopefully means it will only last about a week or so. So, umm, hurrah?

When a flare happens, I try to cut down on anything that the flare could ruin. Say, if I have an appointment or need to make an important phone call I will do what I can to put it off until the flare is gone because my cognitive ability goes right out the window. Delicate repairs or mending are definitely off my To Do lists. Sex can be a downright mess if it is the fibro that is acting up. I try to keep my focus narrow and easy to cut down on both outward mistakes and inward strife.
What do you do when you flare? What do you put off, what do you muddle through?