Amazon's Deadly Covid19 Policy

Me, guarded by my loyal pittie, Nissi. 

A combative post. Here, have a nice picture of Nissi & I on our couch.

Times are tough lately. Covid19 is still killing us, and there is no end in sight.

Do not inject disinfectant into your lungs our anywhere else! For fuck's sake, people. 

The 'helpful' effort in question is Amazon's policy to cordon off PPE (personal protection equipment) to be sold only to hospitals. The public version of this on their web page can be read here and more specifically, here. You do not have to read it now, once you go looking for gear you might need you will be sent to this over and over again.  The issue discussed here is not just a problem at Amazon and it's holdings, this kind of decision making is all over the place. Amazon is the place where I am struggling with this the most. Some policies meant to help just make things worse. 

I am interested in purchasing masks. No I am not a hospital or medical practice oriented business. I am someone struggling with auto-immune deficiencies. So I am a person that needs this kind of help more than a regular person with a regularly working immune system. According to my doctor, general medical guidance, and specific lupus guidance. 

Other sorts of folks that need extra protection: cancer and chemo patients, diabetics, people with MS, ME, SLE/lupus, organ transplant recipients, people with replaced joints, older folks... Remember that scary list you hoped would not include you or your loved ones? Yeah, that list. If you are not on it, someone in your life will be, you can count on that. Usually we do not afforded any extra thought or notice, but we are in fact extra vulnerable.

Perhaps in order to get away from the fact that Amazon's system initially allowed predatory market controlling behavior on the part of speculators, they have gone too far in the other direction and currently allow no sales of PPE to the general public. There are no exceptions for people that may be extra vulnerable and trying to stay out of the very places that can purchase PPE.

I want to say that again: in the middle of a plague Amazon will not let sick or disabled people to buy lifesaving gear.  No exceptions, no more finely tuned policy in sight. 

Maybe they should go ask some NYC nurses if they would rather see people like me in a mask in public or clogging up their emergency room. Sure, cloth masks are now recommended for use by the public but that only protects you from me - and I already know I do not have it. How? Because I went through a two week quarantine after suspected exposure at my doctor's office. My family and I started staying home when it was first recommended, and we will be at home except for essential errands, until the stay at home orders are no longer recommended.

It was easy to find gloves, gowns, and shields on their site that I could buy. Hell, I did buy some gloves. Masks are blocked much more stringently. 

This is an easy fix - put account limits on monthly purchases. Require contact through the standard chat help windows or even phone calls with issue trained account help representatives. Tag accounts that do buy restricted gear so that they come to company attention if they try to sell masks later.

Contacting Amazon got me sent back to the same document listed above, over and over again - even if I start the conversation with "I read your statement regarding PPE and #Covid19..." 

Next time you see those tallies of the sick and the dead, maybe you will wonder along with me, about how many of those folks would still be here if they could have protected themselves.

Yes, I am aware of the stated goals of leaving this gear for purchase by hospitals and I do somewhat agree. Nurses, techs, and staff need the right gear to to their job. That point is getting a lot of play everywhere, but for the record I want people to know about this particular consequence of knee jerk over reactions. Sick people wanting to avoid Covid19 are not the cause of the shortage: US government corruption, neglect of the emergency stockpiles, for profit hospitals using "just in time" supply chains, the wicked looking to corner markets... That is one of many reasons why people are dying for the lack of PPE.

ObamaPhone or Indiana Lifeline Assistance

So I received my "ObamaPhone" application in the mail recently. I know there is so much to talk about right now, but since I have this in front of me and there is a ton of false information and ignorance about this particular subject I think this is necessary. Also: I want to contribute to the works that actually help people on occasion - this blog is not just for me sounding off about things that are wrong.

Picture of the flyer that came with my application. I wanted to show you the application, but I could not come up with a way to show you, Gentle Reader, what I wanted to show you without displaying personal information. 

They are cracking down on fraud and abuse on both corporate and individual levels. Do not falsify anything on your application.

Let me say right now that there is nothing wrong with needing a lifeline phone. They will only ask you about how you qualify, not about how or why you believe you need their phone. Even if your situation is okay but perhaps subject to cataclysmic change it is something you should consider. Maybe your need is obvious and undeniable. Maybe everything is fine today, but the finances are out of your hands. Maybe it will only take one big couple fight to find you in desperate need of a phone. Maybe you are at home taking care of a parent that uses access to cars, phones and whatnot to control you and your business. Only people that could really need one are even eligible, so do not let internalized classism keep you from help you need no matter why you need it. 

My application came to me though my health coverage. I am disabled so I have the state's health program. You can see if you are eligible for Indiana's Lifeline Assistance program here at Safelink. As with all things "free" it comes with ad offers and such, but you can opt out of most of them. But I am getting ahead of myself. 

You can apply straight up at the website above if you do not receive a pre-approved application in the mail. (Note: that approval only lasts a few days, so use your application right away if you receive one.) You can also apply at your local library. If you are having extreme trouble, you can apply over the phone, but they do save that for folks having trouble with the process.

The application I received is in English on one side, Spanish on the other, and I think they have other language options at the web site. All I had to fill out was my name, address, last four Social Security number digits, and a contact phone number if you have one. There is also a box to check if your address is temporary. 

Next you pick your plan. The choices are 68 minutes a month, 125 minutes a month, and 250 minutes a month. Each plan comes with different options. The most important one is that the 68 and 125 plans have roll over/carry over minutes, whereas the 250 plan does not. The first couple of months have bonus minutes, and my offer included free calls to my docs even if my time is used up. Speaking of, you can of course buy SafeLink cards to extend your time if you have used it up for the month.

Once you get though that, you have to swear under penalty of perjury that you belong to the plan they believe qualifies you and a handful of other statements like that a qualifying household can only participate in the plan once. If you have trouble reading small print I definitely recommend using the website so you can use your browser options to size the text to your comfort level and ability.

That is it. You can fill out the paper application, go online, call their question line, fax it. As my own application progresses I will update this article. I am happy to say that the process seems to be fairly easy so far. 

Updates will go here. Corrections to the above, if needed, will be added where appropriate and clearly indicated.

• This process immediately showed itself to be a government program, in that it is difficult to navigate in ways that only the government can produce (and I mean in general, no offense to the current administration).
• I filled out the paper application so I could walk through it in this article, but my plan was to go online to file. However, the first thing Safelink wants is your "enrollment ID." Guess what? There is no such thing labeled on the application. There is a member ID, and promo code, and a bar code, but no such number labeled.
• My call to the help number at the bottom of the paperwork was promptly answered, filling me with false hope. The support personnel on the other end of the line was difficult to hear, and stuck to a script which did not answer my question at all. At one point there was an indication that it might be my insurance number (my qualifying program), but that is also used as my "member ID" and was not usable as my "enrollment ID." So that was a 14 minute exercise in futility.
• I could not start a fresh application because their web form would not accept my hyphenated last name. Later even the tech support agent helping me had trouble and even asked me if I had changed it on my government paperwork. (Yes, I did, sexist coder that wrote this form, I did.)
• Next is my call to the help line listed on their web page. They have separate numbers for account help and tech support. The line is automated at first and is designed to help without connecting you to a real person. I needed a live person. It took two minutes to get connected to live help, which is not bad in my experience.
• Again, the script given to assist customers was almost the opposite of help. It took another thirty two minutes to suss out that the only way to get past the lack of "enrollment ID" and the last name business was to apply over the phone. Now, the person I actually dealt with was heroic in trying to stick to the script. She also actually wanted to and eventually did help.
• At one point I had to give the "I have worked in tech and tech support, I would not be bugging you if anything I could try worked!" speil. 
• It was assumed I wanted the 250 minute plan, the others were not mentioned.
• Applying over the phone is tedious, repetitive and irritating. If you can use any other method, I recommend quite strongly that you do so.
• So now the wait is on! 7 to 10 business days should produce an Indiana Lifeline Assistance handset...

One True Cause

I find little credibility in the One True Cause argument. Someone else has probably come up with a better name for it, but a quick tour through Derailing for Dummies has left me unsatisfied. Make no mistake, I find D4D otherwise very useful and like it quite a lot! Give me a minute, and I think you will find that "One True Cause" is used frequently as a derailing and discrediting tactic.

To clear this up, I do not mean "cause" as in cause and effect, although that is also a logical fallacy. I am using "cause" in One True Cause or 1TC or OTC to mean a situation, bigotry, societal failure, civil rights issue... the sort of causes we gather around to solve, resolve, improve, remove, make better. The intent is to make your cause less worthy of time, attention, and effort than their cause.

The One True Cause is this: why are you talking about/working on/devoting time and energy to X cause when Y cause is more important, more universal, more pressing and/or more personal? The OTC shares mental real estate with the Oppression Olympics, although the person committing the logical fallacy need not believe or be touched by either cause, they just want to be done with yours.

A recent example I have seen is this paraphrase of mine: how can you talk about Glenn Greenwalt's pal getting detained and the chilling effect it may have on free speech when Greenwalt is a lying jerk and other people have been treated worse? Here, I respectfully posit that one can care about the assault on free speech via detention of loved ones no matter how much one may dislike the people in this particular story and even still care about the dishonesty and ethical questions raised by the same persons. I can think that GG looks like a lying jerk and still beat the drum of free speech.

A common OTC argument is often brought up regarding US drone bombing. We mustn't concern ourselves with the innocents murdered in the never ending search for "top Al Qaeda" operatives because that would diminish our ability to kill the "right" people in Pakistan, Yemen, Afghanistan... over there. Except that innocents murdered in a bloody attempt to exact justice is how this all started, whether you think it started with 9/11 or the use of Afghani people as chess pieces to fight a Cold War with the USSR, or, or, or...

Admittedly, it may be hard to drag our focus from getting through our own days, fighting the oppressions heaped upon us, scraping to put what we can on the table at dinner time for our loved ones to give a damn about people exploded out of existence while doing the same damn thing over there... someplace far away, some place filled with brown people struggling the same struggles and (just like us) never earned the need to fear random death from above. 

As a disabled person raising a ruckus, I see the One True Cause fallacy all the time. How can I complain about the lack of accessibility at the local Pride Fest when that just give critics more fuel to try to shut it down? Well, I can tell you that as bisexual woman with disabilities I could not cross streets because beer booths had deliberately blocked curb cuts. How can I, a poor white lady, spend time on race issues when I should be focused on poverty? Well, my daughters go to the same schools that are neglected because there are not enough white faces in those schools for the people in power to care about them. Even if they went to lily white schools, better education for "inner city" or "deprived" schools means more skilled workers and smarter citizens which increases economic opportunity for everyone. 

Often One True Cause is used with some legitimate feeling, worry that this other cause will suffer if people are not singularly devoted to it. People and their issues can be complex, and OTC often ignores the intersections that exist in social justice, in caring about freedom and real opportunities for all peoples. But just as we can love our parents, our significant others/spouses, our children, and our friends and extended family - I believe that we can care about more than one cause with legitimate depth of feeling and commitment. Some of us must do so, whether we ever wanted to or not. Just inside our walls here at home we are directly concerned with disability, neuro-atypicality of various types, feminism, poverty, school quality/funding, the Affordable Care Act/healthcare accessibility in general, religious freedom, racism (our neighbors and our children's peers are more melanin gifted than our family), QUILTBAG rights and issues... 

OTC is just one more minor oppression. OTC is other people telling you what causes they think you should support. OTC is just one more way to exert control, but worse since is is usually done by social justice folks to other social justice folks. So it is likely to be listened to, likely to bypass the filters we put in place when we are dealing with folks that could not care less about making the US a more just place. This often comes from people we respect, trust - folks we value in some way.

So you see, we had to learn to juggle many interests and that is just a brief overview. OTC has no place in our social justice cosmology. OTC is different than picking the battles that mean something to you: I get that.  One True Cause desires to denigrate other causes (others' causes?), and that is not cricket. On a good body day, I can actually chew gum, pat my head and rub my tummy all at the same time. But do not hold your breath waiting for a good day, I have less than a handful of those a month right now. The ones I get - I know how to spend them!

Dear Bill Maher

Dear Bill Maher:


Fuck you.


Wait, perhaps I should explain. On your HBO series, Real Time with Bill Maher, episode 238, after your opening monologue, you conducted an interview with Dr. Drew Pinsky.


For the most part, it was the standard off-and-on funny middling self-help celebrity interview. I had some hope that this would be good stuff when Pinsky called "bullshit" right away on some of the standard thought processes regarding celebrities and addition. Even better, when you both touched on how street drugs seem to, regarding addition in general, have different, less fatal outcomes than prescription drug addition. This is not part of current common wisdom and needs more discussion and scrutiny. I thought it was useful that you two delved into why celebrity addiction deaths seem to follow a pattern regarding "downers." It was really poignant when you two mentioned that sleep is the one thing that no one, no matter what their wealth and status, can order up on demand (particularly once one has built up a resistance to  Benzodiazepines , etc...).


But you and Dr. Pinsky talked a bit about painkillers, and you went so far off the rails you crashed the train in to the station. You quoted a statistic stating that while USians are a small percent of the world population, we use 56 percent of the painkillers and asked "What is it about Americans that we cannot cope with pain?" 


Deep breath, here we go...


So just starting out you make a gross generalization (and I do mean gross) and make me wonder what the hell is wrong with you. You give that statistic without citation, and with a number of assumptions. Have you even thought about what may be contributing to that statistic? That perhaps, with our extended lifespans that people are living longer in bodies that become more and more prone to conditions that cause pain? That there are numerous conditions out there that can not be cured, used to be fatal, but now are at least partially manageable and that one of the things that needs to be managed is often pain?


What is really important here is that you are feeding a stereotype of Americans using painkillers that itself can be deadly. Chronic pain is a vicious thing that uncoils into every aspect of your life, poisoning it. It does not just harm, it kills. Chronic pain kills enjoyment. Chronic pain kills serenity. Chronic pain kills relationships. Chronic pain kills self esteem and self reliance. Chronic pain drives people to suicide.


Do you have any idea how many people I hear from that live their lives in more pain than necessary, not out of deprivation but because of the stigma of pain killers? It is all I can do to not stop right now and sob just at the thought of the needless pain that I personally know is out there this morning. I am now, right now, needlessly suffering because my current pain killer and dose is no longer effective, but I just do not want to wrestle with my health care network. I just do not have the mental and emotional stamina to face being treated like a criminal because I have the misfortune to have a body that hurts.


Mr. Maher, please quit feeding the stereotype. There is genuine suffering out there, in here, that should not exist. If nothing else, in this modern age, we ought to be able to alleviate suffering. Our willingness to do so is part of our measure as human beings. 


I will toast you, Mr. Maher, the next time I take my nearly criminalized, carefully measured and monitored, and now rapidly approaching useless pain killer dose. If you cannot speak of those in pain or chronic pain with some humanity, compassion, and education, then please do not speak of us at all.


Edit: spelling error, 2/26/12

The President's First Hangout

Note: I am writing wrote this as the Hangout happened and I watched it on YouTube. The hangout, I think, will be archived on YouTube here. (I am having tense issues, writing it as it happens knowing you can only read it later - so please pardon the ones I do not catch. Thank you!)


This was exciting! I love that this White House Administration is on top of tech trends and that they are using G+ to interact directly with the public. The people they picked to speak to President Obama are smart, have good questions, and over all are leaving a good impression with me. PotUS seemed comfortable and real (as real as a politician can be, anyhow), like you are talking to him and not the facade a lot of people in politics seem to put on in public.


The wife with the unemployed husband had a very real story. I am impressed that the President delved into it, finding out his specialty and asking for a resume. He treated it like he was dealing with lives and not talking points.


The #Occupy protester reached out and squeezed my cardiac muscles in a way I did not expect. It seemed kind of hollow to go to "grow the economy" as an answer, but I guess I understand it. But the big picture plans ring hollow when your stomach is empty.


The mom that is asking about children and learning about economics
PotUS rightfully mentioned Know Before You Owe, which is a new program from the Consumer Financial Protection Bureau. You cannot just have one talk about how to manage finances with your kids. While they should probably not have a lot of contact with the family's personal finances, they should know that this is something they will have to manage and get solid advice on how to do so.


I like the explanation that the President gave on foreign aid. It is less that one percent of the budget, and that needs to be emphasized in the conversation. He touched on the strategy and human interest involved. People misunderstand almost everything about foreign aid from how much we spend to what we spend it on and why. Sometimes we give money to people that, as they say, "hate us," but still have a good reason to spend money there.


The next question was about unmanned drone strikes. The President does not believe that the drones cause "large" numbers of civilian casualties. I think there is a perception problem there, but that may just be me. If it is your child killed in a drone strike, even that one death is unacceptable as an operational risk. He emphasized the information gathering that happens before a drone takes off and that they do a lot of work to make sure that they are going after appropriate targets only and do their best to minimize civilian casualties. I disagree with him here completely, but feel he answered the question fairly well.


The next subject as education and employment. Who needs what kind of training? Maybe, said the President, you want to be a graphics designer and only need a two years or a six month program before you have the skills to do your job well. Then he moved on to the changes made in student loans and cutting out the middle man in getting school funds directly to student. Then he mentioned encouraging tax credits for families with students in colleges and universities. The President has also asked the states to help more with funding schools and programs. Then he went to rewarding innovation and good ideas from schools that save money but get the job of educating done.


On the same subject, he talked about how the economic outlook is hitting people as they try to plan their future like college. He acknowledged that it is difficult to invest in a higher education if it looks like you may never be able to pay it back. He does congratulate young people for having such a keen and able eye on their future, but continues to emphasize that they will do better with a degree than with a high school diploma.


SOPA and PIPA were brought up in a question. President Obama spoke about protecting against internet piracy while allowing ideas and information to flow freely. He does seem to have some respect for the open culture of the Internet, which is unusual in our politicians. He addressed a case involving extradition and revealed that he is not involved personally involved in it.


And then came Alpha Cat! He asked his question as President Obama and it was funny but not disrespectful. The President stated that he felt that the ability to poke fun and satire political figures is important and speaks to the strength of our democracy.


The Hangout members were then given the opportunity to ask a quick personal question. The first one was about the PotUS and dancing. He answered it with grace and humor. I felt like there were uncomfortable racial overtones in asking a white person asking a black person to dance for them, let alone the President of the United States. The next questioner asked if he could be the personal physician to PotUS after he graduated. The third asked about how it felt to no be able to go get a snack at a convenience store if he wanted to - and the President talked about the nuts and bolts of just wanting to go run an errand. The forth questioner asked if PotUS would come to his school and expand the under-dog school's prestige. PotUS responded with the idea that their participation in the Hangout/Interview would hopefully help with that (as the only school participating). The last asked about the President and the First Lady's upcoming 20th wedding anniversary. He stated that there may be some logistical trouble since it is in October (near the election) and he may have to delay a big celebration. She also asked to and then put her children on camera briefly. The President smiled and eagerly told her to bring her kids out, which was pretty cool.


The Hangout was quickly and neatly wrapped up. I am really impressed at how smoothly this went. With both pre-recorded and live questioners, it could have been a big mess. Hell, I was on the page before it started and even their "Hey is this thing on" was professional and brief. Over all, I want to see a lot more of this kind of near-direct interaction with the President and his Administration. The White House already has an A+ in my book on their use and understanding of tech and social media.

Relaunch!

Hallo! It has been quiet some time, no? Well, the silence coming from my little corner of the Web is done. This is my official relaunch of my blog! While my silence has been due, in part, to laziness; I have also been writing a lot, and thinking even more.


What do I want PatientC to be? I want it to be a tool for making the world a better place - even if it is just a tiny bit, a teaspoon at a time. I want to talk about what is on my mind freely, without fear. I have spent no small amount of time looking at the history of social justice bloggers that have been bullied out of the Internet and talking with my family about the possibility of that sort of thing coming to our door.


I have decided that I will post about whatever is on my mind. So not every post is going to be about disability or related things or maybe even social justice. 

• I may talk about gaming, especially video games. 
• Hell, I have a stack of energy drink reviews - I could justify those as being a defense mechanism against both my internal fatigue and the fatigue produced by a couple of my medications. But I also simply like them, and like trying new ones. 
• When my hands can manage it, I knit, so that may come up. This is an election year, so you can bet that I am going to talk about that. 
• I may post consolidations of the days action items for you to participate in or not as you choose. 
• Other social justice stuff will definitely come up. So you can expect posts on sexism, sexual orientation, race, class/poverty...
• I am studying Buddhism, so expect that to be a subject that comes up with some regularity.

The truth of the matter is that I am a human being, along with being a woman, being disabled, being bisexual, dealing with poverty* issues, or any number of things. So a lot of things come up in my life and in my addled brain, and I may share any of them with you at any time.


If you see a story, issue, or item of some sort, and you think I might be able to write about it in a worthwhile way, let me know.


I will be expanding my efforts to include more regular writing, some videos, and expanding my concept of what I can do and share with you.






*I am a poor person lucky enough to live as a middle class person. It is complicated.

On Social Justice Blogging - Jumping in the Pool Head First - Advice

I have thought long and hard about trying to become part of the social justice blogging community. As a reader/lurker over the past handful of years or so, I have watched the public side of some very ugly shit (ableism, racism, fat hatred, identity policing…) going down on various sites. I assume that what went on behind the scenes was much, much worse. I also figure that any community is made up of people, and sometimes people are like that. 

Yet, I still have things to say and a desire to say them – even if they are only ever seen by some family and friends. And you!

I think that it is inadvisable to trust someone just because they share a common interest, even when that interest is supposed to be the “tide that lifts all boats.” So I will make what connections I can based on personal observation rather than assuming that someone with an SJ cause is going to know, understand, or care about what I hold dear. I expect to be treated the same.

I know that I will be distrusted by a lot of folks because I am white, and I get that as much as I can. I am also bisexual, disabled (although I pass occasionally), born and raised lower class (not so much now, but that stays with you in ways that are surprising and disturbing), pervy, nontheistic, and poly. This is not an Oppression Olympics entry; I just want to lay it out there here and now. Where I am privileged I will endeavor to be the best ally I can be and promise to improve at each opportunity.

At home, I have a saying, "The reason we do not argue when I am wrong is because I think before I flap my jaw and when I am wrong I apologize and shut the hell up!"

What is your advice for speaking your piece with strength, compassion, and integrity while weathering whatever storm may blow?

I may be late getting to comments today. I have a physical issue that is kicking my metaphorical ass and I am going to go look at a car today. Cross your tentacles if you care to do so - I could really use a car! This is the reason for the super early post and my anticipated absence.

Here is a sneak peak at what I have cooking for you, Dear Reader: a vitriolic crip rant I wrote one lonely night, a review of a product called Pill Glide, some thoughts on blogging while avoidant, some more Things That Make My Life Easier (with something catchier to call it, perhaps!), my experiences with Moore and Me, some neato links, and a small series of articles detailing my politics and why I think they are the correct choices for me.

On Trigger Warnings

Trigger warning: the explicit statement that a piece is about to discuss topics that some may find difficult or disturbing. For example, a blog post about Roman Polanski’s crimes may read “Trigger Warning: Underage Rape.” Their use (or lack thereof) on the web is sometimes highly debated. A great definition of trigger warnings and an advocacy of their use is here. You should be reading Shakesville, if you are not already.

On one hand, I think trigger warnings are great. It is a good way to avoid inadvertently sending someone shivering into a corner because you have mentioned something that they actually experienced and still haunts them (or any version of that scenario). This should be a default part of trying to be a decent human being, no? I do not want to be the asshole that does that to someone, do you? A lot of sites I read and respect use them, and a lot of readers appreciate them.

On the other hand, the little writing snob that I apparently have in my head says, “Well, if you write like you are supposed to, with a summary at the top and all, then that is the trigger warning!” This, of course, makes me feel like a crappy writer if I use them. Yes, even when you take into consideration that blog posts are far more conversational than formal. Please do not mistake me; I am not in a position to deride anyone’s writing style. That voice derides my writing constantly, as you can probably tell. Most sites that use trigger warnings, given the beginning of this paragraph, do not need the addition of the words “trigger warning” as they let you know what they are talking about right away, anyhow.

This also makes us de facto gatekeepers of each others’ mental health, in an amorphous way. We are our sisters & brothers keepers to an extent. But how are we to know what is a trigger for each reader? Hell, do you know all of your own? Are you sure? This article talks about it very intelligently, and I highly respect the folks that write at flip flopping joy.

If you were abused and that abuse was facilitated by putting a blue pillowcase over your head, am I a monster when I offer my hospitality and the guest sheets are blue? No. I am a monster if when you stand at the door shivering I do not offer my arm, lead you away, and change the damn sheets. But I cannot do that unless I know to do so, and I cannot pretend to know what may set you, the reader, into that particular hell called being triggered.

So, in essence, I will be giving trigger warnings (because it is the correct thing to do), but usually not using that exact label (because of the snob in my head). I do promise to do my best (which varies on any given day more than it does for most folks - thanks, lupus/SLE) each day to write well, and let you know up at the top if there is problematic content. You are welcome to call me out, if you wish, when I fail. This should both meet the needs of people that need to concern themselves with being triggered, and placate the snob in my head.

Safe Space

I have read a lot on the web over the past mumble years. (No kidding, since before it was all connected, e-mail address could be lines long and have things like BANG in them, and pretty much consisted of us writing on clay tablets, smashing them into a fine powder, and sifting them into phone lines for transmit. Maybe I am teasing about the tablet thing.) In the past couple of years, I have gotten involved in educating myself on a subject I had always held dear, but mostly felt I would be alone in: social justice.

One of the things I have learned is the importance of a safe space policy. This allows the disenfranchised to give air to their voice without reprisal from the usual subjects. You will not be told your tone about feminism is too strident here. You will not be told to apologize to the jack hole that stepped on your toes here.

When I first told my friends about Patient C, one very smart one asked me about my commenting policy and why I had it. I responded that the conversations are better on the sites I read that have such a policy. I have seen the tales of threats of rape, death threats, and various evils out there, and I will not allow them here.

Now, on the other hand, some folks view the entire web as their very own First Amendment playground and like no fetters placed upon it. If this is you, you will not be happy here. So take my fond farewells with no bitterness, and may you find what you seek elsewhere. Right up at the top of this page, on the toolbar, you can start your own blog for free and set whatever commenting policy you like. You do not have to put up with mine.

This? This is my little corner of the Internet, and inside the bounds set by my host, what I say, goes. If you post bullshit, I may not publish it at all. I may publish it to correct, ridicule, or maybe even correct and belittle you depending on my mood.

I intend to amplify certain voices over others. I intend to speak to my own experiences, point you towards the experiences of others that may be edifying, and share information in a way that, if not equal, then lifts up the voices that are rarely heard.

On this, and a many other things, am sure I have screwed up regarding the privilege I do have. This will undoubtedly continue, as I try my best to my efforts as mistake-free as possible. It is okay to point it out when I do. I cannot learn and grow if I do not know when I fuck up. I do not expect those with disadvantages different than my own to instruct me, but I would appreciate the occasional helping hand. So if you have the spoons and the inclination, I will do all I can to accept that criticism with grace, learning, and as much of a lack of ego as I can muster.

(Edited - that last paragraph had a ton of grammatical errors!)

Purpose

I have thought long and hard about what it is, exactly, that I want to do with Patient C.

• I want to give solid advice for navigating the medical world, to lend a hand to folks that are going through what I went through for a few years, and still deal with on occasion.
• I want to help spread news and information about disability, both as an informational service and to help negate that lonely feeling that often accompanies chronic illness and disability.
• I also want to give news and commentary on the intersection of health with class, race, gender and other social justice issues.
• Occasionally, I may post something random (interesting, cute, infuriating, etc...) that I ran into and really want to discuss -- you have been warned!

Sometimes, things may get really personal. Health, and the issues surrounding it, can sometimes be intensely personal. I know that some folks may believe that I am giving too much focus to the medicalization of disability and of folks that are disabled, but I want to make that part of being disabled a little easier to navigate.

After a few false starts, I am ready to commit to updating this blog on at least a weekly basis.

Comment Policy

This is my first attempt at a comments policy, so if you have useful suggestions, please post them below.

While this may not need to be said, I will state it here: all decisions will be based on my perceptions and judgment.

Summary/TL;DR: Do not be an asshole.

• Comments are moderated: at this time, all comments are moderated. I am new to writing a blog like this, with a focus on advice and social justice, so this is subject to change later. I will do my best to moderate comment queues as quickly as possible, depending on spoons.
  
• Be polite: the world is rough and tumble enough as it is. This is meant to be a place for polite discourse. Feel free to question a person's ideas, but avoid personal attacks.
• Intolerance: Isms will not be tolerated. This includes, but is not limited to the following: able-ism, class-ism, racism, size-ism, sexism. Trans-phobia and homophobia will be not be allowed. While I have had an interest in social justice since I was a teen, I am relatively new to the language of the movement, and may occasionally make mistakes in both my post and in approving comments. It is okay to point out those mistakes, just know that I am doing my best and am always working to improve.
  
• Trolling: No trolling. Yes, trolling will be defined by me.
  

So relax, speak your mind, share ideas and opinions -- all I ask is that we try to treat each other with some tolerance.

So, that seems to be a good start, although I expect to make additions, changes, and whatnot as time goes on.