Rationed Health Care Will Kill Me

Dear Reader, let us just wade right in here. Recently you may have heard a term new to most: rationed health care (RHC). What is it? It is the medical community's response to running out of doctors, equipment, or even human organs. It is fascism and bigotry that most USians can either ignore or give their tacit approval. I know that the title above may seem to be overly ripe click bait, but the truth is more murky than your local lab coat may be willing to admit.

Nissi, a black pittie, looking sadly at the camera. 

Here in the early spring of 2020, the spread of a novel corona virus is infecting people with Covid19. While less ambitious than the Black Plague, it is currently associated with a 2-5% fatality rate, with that rate increasing dramatically for those that have managed to kick around on this dirtball longer than most, those making the best of life with other conditions like diabetes, cancer, or other chronic conditions. The best data on US standards prior to Covid19 can be found in the Uniform Anatomical Gift Act, a non binding document adopted state by state (sometimes with changes.)

The argument goes that first come first serve is UNFAIR in a medical crisis. I watched a nurse, in real time, talk as though saying that some jaggoff with young kids is more deserving of medical supplies and effort than a grandma with a poor pancreas. His youth and status as someone that could mash their meat against someone else's meat enough to make yet more meat makes him more worthy of LIFE ITSELF. Is that how you want your Granny to leave this Earth?  Do you think that would be fair to her and her family?

This problem is not a surprise. We knew we had too few ventilators, too few beds, too few caregivers. The Obama Administration knew, and told this clown car known as the Trump Administration. The WHO knew, Bill Gates knew, all credible sources that looked at the problem knew. They knew that we would need to ration care during a health emergency like this one and our powers that be DO NOTHING. DID NOTHING. And as soon as the public looks away, they will go right back to it unless something changes. 

At the center of this disaster is negligence at both the corporate and governmental level. Profit making hospitals have to ration their money into the features of a hospital that can generate profit. That profit comes from you, the patient, the taxpayer and goes to the very top of their corporate chain. It does not go to new buildings to provide more health care to the less privileged making them also under-served. It does not go to buying equipment that may only get used in an emergency. And the US government allowed it.

I am not knocking an individual person here. Nor do I have a chance in this fight - if infected, I am likely to die at home long before I would give consent to be taken to a hospital in this pandemic. My crippled immune system would make me more likely to get sick from the germs in an ER, and the stress would cause a flare that would go unattended by most staff even in the best of times. Even if I were to go to an ER for something else, Covid19, germs, worn out & stressed staff not able to pay attention to special needs cases, and my body's stress response means I would die of one or the other. So I have made the decision to stay home, to die at home if it comes to that: surrounded by those that can care for me, that care about me, in however much peace and comfort we can muster. 

Individuals run from the responsibility of their own decisions by hiding as a cog in a machine, just a representative for a corporation they barely understand, let along control. Modern doctors do not stand up for the poor like they should. As of yesterday, apparently this country realized that black and brown folk are 70% of Covid19 deaths. This is the result of a chain of inequity of which the hospitals were the last link of the chain. THIS IS ALSO THE RESULT OF RATIONED CARE. You can disagree with my earlier statement about bigotry in RHC, but the truth is in thousands of dead black and brown bodies.

There is no fairness in a plague. There is no fairness in a hospital where infection floats from room to room on garb that has not been changed or  sterilized. There is no fairness in death. None. First come first served has the benefit of being something that we do see as fair in other circumstances. It also has the benefit of rewarding those that took action early. We can do better. We can make sure that we need to ration less the next time, and the time after that. 

You are welcome to do your own research, (find out how much your own life is worth, you may be surprised.) I did before I ranted above. Much love to health care workers in general and ALL those workers that make sure we can live though this: from green grocers to ER nurses to delivery drivers to electricians. You are seen, needed, and awesome. 

Neglected Blog Gets Quarantine Post

Hallo, there. It sure has been a minute. So, yeah, obvious title is obvious. Actually, here there has been little change between pre-shelter/safety/health/Covid isolation/quarantine/just in case lock down and during it for me and mine. We shop a little further out, order everything we can and try to be mindful. 

On a happy note, congratulations to me for surviving a formal quarantine order. No fancy gown or certificate, so I admit I feel a little cheated. I had to go to my doctor's office for my quarterly Criminal Yet? pain patient visit and sometime during the day a patient that tested positive for Covid-19 was in the same building. (Not that they had any tests for us, the hoi polloi. Their rep said they had none at all but vapor locked when I asked how they could know a C19 patient was there with such a certainty as to change our lives so dramatically.) As of April 2nd I am free & clear to only be as worried miserable as everybody else!

That is right. In my county there were no tests available for a aging, disabled, immunocompromised woman even when suspected of being exposed to something as deadly as this coronavirus.

I have debated the future of this blog so many times I can hardly count them all. There are many more disability blogs out there than ever before and they are written by smarter, sharper, and more insightful people saying most of the things I think about saying here.

I do need to get some shit off of my chest, from Buddhism to the Bore in Chief and I suspect if I keep filling the ears of my Guys, they may go mad - and it just is not fair to corner them during a pandemic faux quarantine.  Windows is nagging me about yet another update, so I will see you in the next entry - or the previous ones if you so desire. Look around, get a feel of the place.

Thanks for stopping by!

Bad Cripple: Miley "Critics" Getting It Wrong

So, Miley Cyrus is getting support and defense from some damn odd corners over the "tiny strokes" joke.  The people that have experienced TIA/micro-strokes and their allies are getting the "you humorless fucks" bullshit from such people. I heard or read four just yesterday, before I even engaged with this story so this mean ignorance is not isolated enough to blame just one or a few jerks with links. 

Well, when a micro blood clot or dozen takes away your children's name or you ability to do math or tie a shoe - you can come and tell me how fucking hilarious it was for you. When your spouse wakes up and gives you a blank stare or screams because they do not remember you, tell me how fucking hilarious you both found it. When it is followed by massive stroke, you can tell me how it is to laugh while drooling into a cup.
Oh, and for the people whining that the disabled should give up their rights to peace and privacy and "educate" the public, the UK Stroke Association did that in their letter. Educate your own damn selves, quit telling people that are having enough trouble with strokes and all to Google That for You.

I am sticking with the "not funny" camp that neuro-atypical people get shoved into when no one wants to validate our experiences. This is not the only incident of ableism of hers going on right fucking now. There are a lot of folks trying to let her know, like Sinead O'Connor, that this is unacceptable, but she keeps doing it anyway with the minimum, petulant apologies. Mainly because a bunch of heartless fucks that think strokes will never happen to them are backing this bullshit. This is not killing Hannah Montana, this is socially irresponsible fucking garbage.

If you want to insist this kind of oppressive bullshit is funny: fuck you. It is fucking brain damage you petulant pusillanimous fuckwits. It takes away random parts of your life, some you will never get back and can signal more massive strokes. I am almost ready to say that I am happy to hit folks with a baseball bat until you get some yourself so you can know how not fucking funny it is. Sympathy via the application of sudden, satisfying force. 

Outing Invisible Disablilities

As you well know, Gentle Reader, not every disability is visible to the untrained, naked eye. You know that most of what contributes to my state of disability is invisible unless I use an aid to help myself get around. I get a lot of hairy eyeballs if I use disability parking or other help from folks that think disability is a state for them to judge themselves, based only on what they see in one moment.

Well, someone in Portland calling themselves "Artemis of the wild" has gone further. Reported by the Oregonian via Gawker, this pusillanimous fuckwit has decided that folks receiving disability and have the audacity to vote should be unveiled publicly. For the sake of your sanity, do not read the comments for either article. 

I could count the ways that this is screwed up, but you and I, Gentle Reader, have things to do and lives to live. Keeping that in mind, let us take a brief tour of a few of the worst bits.

• People are not one issue voters.
• You cannot see a whole host of mental and physical disabilities. Just get fucking used to that.
• Voting is a right and a privilege of US citizenship, even if the far right is trying to take it away. Disability, even if you get those meager benefits, does not in any way strip a person of citizenship or any other status besides "temporarily able bodied" (also: TAB).

You do not get to decide who is disabled and who is faking it. If they have run the disability-approval gauntlet (and it is pretty horrible for some) and did the song and dance to get their status validated by the Social Security Administration to receive aid, or even just their doc's office to get a parking pass then they have already proved to anyone that matters that they qualified. You need to back the hell off. They are already handling enough extra difficulty being disabled and all. 

There are only a few people disabled folk are required to give their status to, and it is not you, Jackass of the suburbs.

Dear "Artemis of the wild,"

I am disabled. I vote. I do not cast my votes solely on the basis of favoritism of disability status (if I did, there is almost no such thing).

I still count.

Fuck you.

Sincerely,

PatientC

PatientC smoking a clove cig against a fiery background.

Microsoft's Rape Joke at E3

Women and girls should not need to play games to play games. But we do. The following post is about sexism in gaming. You do not need to have a press pass to E3 or be into MLG to understand what happened or anything, just know that it is a gaming industry conference and that this industry is particularly hot spot for sexism and gender essentialism (along with dis/ableism, racism, and most social ills that come to the mind of rage quitting troglodytes).

Earlier this week, a cheap ass rape joke was made at a Microsoft press event. 
Feminist Frequency, no stranger to sexism and frequent target of the fetid MRA crowd, was given a reminder of their tantrum tactics when she mentioned Microsoft/Xbox's lack of female protagonists. The next day FF posted some offerings that do appear to offer women out in front. I like to think that she posted it just because it was news and an interesting juxtaposition. However, the bellowing boys of the web demand (you can see it for yourself in some of the offerings in the first FF link) that should any right, proper, human behavior happen anywhere near a sexist foul up, that it be reported on as well or nay, you are only telling an unfair part of a story to forward your misandrist agenda!

Microsoft issues an apology - so those would-be non-apologists attempting to downplay this or act like it was not wrong, can have a goddamn seat.

The trouble is not just the rape joke itself. The trouble is not just that it was issued by a superiorly experienced and equipped male player to a less experienced and equipped female player. The trouble is not just that it was made in a professional environment. The trouble is not just that it was made in a public environment.  The trouble is not that behavior like this but far more terrible is ubiquitous in not just gaming but in a lot of places in US culture - so much so that complaining about this one incident is seen as hair-splitting, nit-picking, and mountain-of-molehill making. The trouble is not just the message this sends to young gamers of all/any genders.

The trouble is all of the above. 

Stealing Memories

In the middle of a bunch of personal drama, a package arrived for me. The package had a t-shirt for a web site and YouTube series I was supporting until the middle of said personal drama. So I was in a quandary about what to do with said t-shirt. Do I throw it away? Keep it? Give it to one of the kids and get reminded of the drama every time they wear it, but give the money I spend some use? 

Mentioning my quandary created what I should have known, given hindsight, yet more drama. I ended up refusing the offer to refund my money. Here is why: not only did I pay for the shirt, I _earned_ it. I earned it for watching every episode. I earned it promoting episodes. I earned it talking up the show. Least of all, I earned it by buying the damn thing. I was not going to let a damn social mess tell me any different, even as this guy tried to steal my memories.

Before you start to think that "stealing memories" is a bit dramatic itself, let me explain. People have tried to steal my memories before. It has happened to you. A person makes an exit from your life, and in the process tries to invalidate every good memory you have of them on the way out the door. Maybe they claim they were only friends with you to make a social situation easier  Maybe they say that they were only there because you give a fine blow job. They do their damnedest to sully or erase the good times, whatever fellowship you may have shared, the contagious smiles, the talking too long, the shared heartache - all of it they take a hearty piss on before they are gone. Now you know what I am talking about, I think.

I decided a couple years back that I would no longer let people steal my memories. If my brain held onto something pleasant, it was going to stay. This was when a couple we had considered great friends and part of our family was making their exit. On the way out, they were stealing what memories they could, and I just decided to not let them. Sure, they were gone shortly after, but I protected my good memories of them and kept them separate from the bullshit that was happening right then. I would remember the bullshit too, but separately. They could retcon their own lives, but not mine.

Do not let assholes make you forget why you thought of them as decent folk. Do not let people erase your good times. Do not let them take away the rough times you shared.

Do not let people steal your memories.

Oh, and the t-shirt? It is going straight into a keepsakes box, unwashed and unworn.

Mixed Week

I am glad to see the end of this week. I am happy that you and I have seen more of each other than usual. I was very happy to be on The Black Guy Who Tips. I have some cool new makeup. My hair is a silver white that I really, really like. I have semi-rimless glasses for the first time, and they have my first progressive lenses for the bifocals I will probably wear the rest of my days. I can see well, for the first time in a minute.

It was not all good. Shannon Larratt died. I am having some difficulty writing about him right now. A couple of folks were unhappy about choices I made. A few were loud and mean about it. The money situation is looking bleak. We have to mess with health coverage again - although I am hoping this will be one of the last times the family will get screwed over in this particular way thanks to the Affordable Care Act.

Whenever a friend leaves, it is painful. Unless you were not committed, when one prunes itself, it hurts. You bleed. I was reserved to just let it happen by the time it reached self-parody. Seriously, the engagement had reached a point at which I was accused of martyring myself for telling my own story. This was aside the fact that when you tell a story of a wrong done to you, you tell a story of a wrong done to you. I threw up my hands. What do you even do with that? The very act of expression on my part was delegitimized. Of course your decisions are correct in your own narrative: otherwise why would you have made them the way you did? The conflict had turned around and started eating itself. 

I told you a tale of being triggered. I am still working on that, and I know I will be for quite some time. By being present, though, by experiencing it real and raw, rather than needing to suppress it or deny it - I feel okay. 

I hope you feel okay, too.

Ally Anxiety

So, Tuesday, I am did my usual thing… I listened to the Blacking It Up pod cast (and you should, too – it is amazing!). Apparently, bridges had been built over the weekend by Jack and Jill’s Cheryl Contee and Elon James White at RightOnline, because we had one of our first trolls. Ms. Contee’s and Mr. White’s adventure is documented here: “INCOGNEGRO:  UNDERCOVER AS A BLACK CONSERVATIVE AT RIGHT ONLINE DURING NETROOTS NATION PART 1." It is a must read! While I already read Jack and Jill Politics, I keep checking the site for the next part…

The pod cast was full of the anticipated and appreciated awesome. Then the troll showed up. What followed caused, for me, a severe case of ally anxiety.

During the pod cast, there is a chat window underneath where the listeners can chat amongst ourselves, respond to the show, ask questions, snark – whatever happens to be going on. Sometimes we wander way off topic, sometimes the show and the chat room work in beautiful harmony. When I started listening to @BlackingItUp and BCCO’s other shows, I just listened for a week or two, because I am a visitor, an ally – and I did not want to come on too strong, too fast, too pushy, too “white liberal on the internet.”

This day, a new person came into the chat. New people are fun and enthusiastically welcomed. This person was not fun. One by one, this person (I presumed he, there was the tell tale reek of mansplaining) started raising racial flags. Whites are racially oppressed, standardized testing is not racially biased, I am colorblind – why aren’t you, I should not get searched at the airport, racial minorities are racists because they complain about race relations, but everyone is racist like me. You know ‘em and hate ‘em: they are the classic tropes of the racist. He would raise one flag, wade into his rightly earned flak, wait for a few moments, and then raise another one. I would not be surprised to find that “oneshotoneki11” (my approximation) is at least a semi-pro troll.

Here is where the ally anxiety comes in: what do you do? I wanted to be out in front, and stomp this asshole into the ground; to stop the badness, to vent the frustration of not being able to confront so many people’s racism, and personally to show that I am not with him or his ilk. But I am working on being an ally; one of the first rules is DO NOT MAKE IT ABOUT YOU IF IT IS NOT ABOUT YOU. So I reeled myself in, spoke my peace once in a while but mostly either stayed out of the way while others let him have it, supported the excellent arguments being made against him and his toxic memetic stew, and expressed dismay that he would violate the hospitality offered him as a new guest.

I know that my case of ally anxiety was nothing, nothing compared to what the black listeners were going through while this was happening. I know that what was going on in my heart, my head, and my gut is miniscule in the grand scope of things. My feelings, my reactions – those are not a big deal to anyone but me. I write this to air it out, to solicit the opinions and experience of others, and to give anyone that wants it an insight into what went on in my head (or heads like mine?) during this. I was angry, I was sad, I was sick. We discovered that four (if I remember correctly) white members of the audience had stayed on this guy, which was also cool. I think that we, the audience, feel a little closer to one another, because of what this asshole brought out a united sense of solidarity in us.

Plucked popinjays like this troll make me ashamed of my skin. I wanted to apologize for his inanity, and I did – but that does not make any sense. No more sense than the bizarre “blaming” that minority groups sometimes face over one individual behaving badly. 

I found out that I was not obviously white, which is kind of neat.Often white racial justice allies are problematic in and of themselves. They refuse to recognize their own internal racism, how all the little assumptions, good, bad, and "neutral" add up to a racism that is insidious, because it can hide.

Racists often do not even know that they are racists, let alone doing evil. You cannot convince someone (though any means) to stop doing something they believe they are not doing in the first place. 

The top of the kyriarchy knows that their days are numbered and that their power is slipping – which, I think, is why they are always scrambling, always grabbing, and always further consolidating their power. With the election of a President that neither looks like them nor shares their history or values, they are now in a full on panic. “Take their country back,” indeed – just as the rest of us may start to think it may actually be our country, too.

Blog note: The various Pod Casts are archived and available on the Brooklyn Comedy Company’s web page. You can also find the shows on ITunes and YouTube – remember to take a moment to rate and comment, they deserve the love.

Shout out to the chat room – sorry about the trash.

SmartAss Commentary: On Tracy Morgan

Two big posts in one day!

If you do not know the story of Tracy Morgan performing at a show and telling an audience that should his hypothetical gay son approached him in an effete manner that he would stab him to death in the neck, you can find out more here and here and here, along with your usual sources.

I have read and heard some unbelievable arguments in favor of Morgan’s tirade, and while [spelling edit] they (and some of their sources) have stunned me, I remain in #TeamThatWasStupidHatefulandWrong. One included that the Facebook author of the expose was not adhering to some standard of “objectivity.” Why should this author, upon hearing Morgan’s hate, have any obligation to be objective regarding what he heard? Why is the burden always on those knocked about to give others the benefit of the doubt? What does the injured party owe to the oppressing party?

Oh, and a flying fuck you to people that say we should be objective about things like this. Frankly, if you can remain coolly aloof and objective about issues of social justice, then you can very well fuck off. If the oppression and degradation of others does not pitch you into a seething caldron of sadness, anger, and righteous rage – then you simply do not care enough to matter to me.

The most interesting part to me is that the argument for Morgan’s free speech is to restrict the free speech of people that found his bit to be offensive. That people are infringing his right to be offensive by speaking up about being offended. Tracy Morgan has freedom of speech, but no one else can have freedom of speech regarding how he uses his? Morgan saying he'd stab his gay son - that is fine, but speaking up about the propagation of anti-LGBTQIA violence, particularly against children, well - that is just out of line and unfair?!?

Remember, constitutionally protected speech means protection from government censorship – not protection from being less marketable. Morgan the man can think and say as he likes, but Morgan, the company, which is that man on a stage making money - he is in the marketplace of ideas and his ideas were loudly rejected. You can't ride that pony to fame and fortune, and then kick it when it bucks you for being an ass.

To argue that one is “allowing” themselves to be bothered by Morgan’s stance that LGBT people should man up and quit being pussies regarding bullying and such is to argue from a position of privilege and to negate the experiences of LGBT people. It also negates the experiences of children and teenagers. One of my most proud parenting moments was when my eldest daughter came to me out of the blue and said, “Thank you for not forgetting what it is like to be a teenage girl.” You forget that young people do not have the social calluses that we develop with age and experience. You blow off the things that cause them genuine distress, because to connect with that feeling is to remember all the slights and wrongs from when you were that age and admit to being that vulnerable, that tender – all over again.

But, but, but – we are taking money out of Morgan’s pocket when we do not like what he said! YES, WE ARE AND THAT IS THE POINT. Morgan’s pockets are lined with our money – he got it by saying things we (the general public) like in the first damn place. He decided to make his living via pleasing the public. Again, this is the free market at work, the free market that has been so very, very good to Morgan. Some say that people can express their opinion, but it shameful when they do to the detriment of someone that makes their living by interacting with the self-same public - that is twisted logic. What does that even mean? We are allowed to like an entertainer’s work, but not allowed to dislike it? There is nothing coherent in that stance.

To those that say “Oh, we don’t know he said that! All we know is what one offended guy wrote!” In all of my reading about this issue, and I have done a lot – there is one thing I have not seen and that is Tracy Morgan issuing any kind of denial. No one that attended the show has claimed that the bit description was untrue. He is headed to Nashville to apologize personally.

I have seen and heard some arguments that depend on the “Equal Opportunity Offender” line of reasoning. You know, when the discrimination, hate speech, abuse, and murder of LGBTQIA and queer youth are distant, horrific memory - then it can be a joke. I am of the opinion that one can, indeed, make a joke about anything. Murder, rape, racism, anything can be a target of humor. But that humor speaks to who you are and what you believe. If your joke about rape makes rapists or would be rapists laugh – then you are being oppressive. If your joke tickles the people that work against the rape culture, then your joke is not oppressive. Joke about what you want, I am fine with that. I am also fine with learning about what you believe by the jokes you make and the people you find deserving of that laugh.

I would much rather ignorant bigots speak their mind long and loud so I am never worried that my viewing time, or my money, goes to supporting their hatred in any way. Let them shout all day, so that the rest of us may know them, make up our own minds about them, and be free to speak and act as WE choose, exercising that same freedom.

Note: Tracy Morgan’s wallet contains not one cent of mine. I am not, and have never been, a fan of his.

Crip Rage Internet Adventures

So, in April I joined an interest specific geek message board. Since it is related to gaming, the first thing (after the mandatory forum newbie/intro threads) I went looking for was disability stuff.  Here is what came of some of my interaction there. I have redacted links and whatnot because I do not hold the site owners responsible for what a handful of assholes do on their board. I do hold web site owners responsible for leaving bigoted stuff up without a least a nod to the fact that the bigotry is not acceptable.

-

There Goes the Warm Fuzzy

So I was reading a thread about handling disabilities while playing {custom game type}, and that had me feeling pretty good. Folks were honest about ability level, trading tips on helpful gear, and there was zero acrimony. Then I saw this: Abused Handicapped Permits {link redacted}.

Wow. Just wow. What the hell is wrong with people?

"Since I cannot determine your level of ability myself on one single, few second viewing you should not be parking there! Walk your fat ass!" I know that this sentiment is not restricted to this forum, or to gaming culture - that it is rampant throughout USian society. It still makes me sick every time I see it. I was really, really hoping not to see it here.

PSA for Fools: Some disabilities are "invisible." No, no one has to justify their parking tag to you. The documents have to be filled out by the patient, certified by a doc, and approved by the DMV - they are not nearly as easy to fake one's way into possession as you think. {While the specifics can vary, the generalized procedure here is a good guide-line.} I could have read Penn & Teller the riot act over their ADA episode. It was so full of ignorance as to boggle the mind. And if you have a relative with a tag, and you believe them to be able-bodied then you should take a long hard look at yourself - they probably did not want to tell you that they now belong to a group you are bigoted against. Would you do so in their place?

Oh my, the all-you-can-eat buffet of fat hatred. First off, noneyadamnbusiness. Seriously. If your disgusting, self-important curiosity must be satisfied, consider this: how on earth do you do full-body cardio from a damn wheelchair or scooter? Never mind that several conditions (and numerous medications) cause weight gain. Never mind the obvious lack of physical ability. If you must make your putrid assumptions, keep them to your damn ignorant self. Even if none of that applies, and one of my fellow 'wheelers has decided that food is one of the few unimpeded pleasures they have, then more power to them!

I say all this as a wheelchair user also at her "ideal" spot on the BMI (which is crap, anyway). Which, by the way, helps earn me the damn “WTF, lady, you aren’t disabled!” stares when I use a handicapped parking spot or my wheelchair.

There's also the ageism, which is disgusting. Old people should not drive! Hahaha! Oh, please, tell me another, won't you? Oh, oh, can you tell me a funny "old people should never have sex joke" too please? I wish you long life, so you can deal with the same bullshit discrimination.

When your TAB ass parks in one of those spots - that is abusing the privilege. With the hell you people put us through with your stairs and your clunky room transitions and your high tables and counter tops and your narrow doorways and your no ASL interpreter services and your jokes about Braille ATMs and your stupid, stupid bathrooms and your dumbass handling of  assistant animals and your disregard for the ADA and your broken elevators and your blocked handicapped parking spots and your putting your baby strollers in the wheelchair spots on buses and your I know disability when I see it attitudes - it is a wonder we put up with any of you at all.

Ahh, I see! You all built those high cabinets for job security - very clever.

The disabled are one of the fastest growing demographics on the planet - live long enough, you will likely join our ranks.

You get the whole rest of the damn world - leave us the wildly insufficient blue parking spaces and the occasional bathroom stall. The disabled are one of the fastest growing demographics on the planet. Pray you do not get old or fat or crippled and have to deal with someone like you were thirty years ago.

Heh.

Whew, that rant felt good. This was probably not the best time or place for this kind of journal entry, but there it is none-the-less.

-

So there is a bit of what comes out when I am disappointed enough, frustrated enough, and just a little angry. Yes, just a little.

On Planned Parenthood, O’Donnell, and Beck

So, unless you store your head under a USian rock, you know that Planned Parenthood was, and is, under attack by the right wing here in the US. You also know that the Democrats to an all-to-rare stand on that issue and the EPA. Online, and in the news, there were plenty of well-spoken, well-written testimonies about Planned Parenthood. Out of all of them, I found Lawrence O’Donnell’s piece on The Last Word to be remarkable, and perhaps able to reach both those directly and indirectly concerned with Planned Parenthood.

Blog note: I am an avid (rabid?) watcher of MSNBC. It is on most of the time in our home. I am also someone that often criticizes the station when I feel it gets things wrong, or when it adds to the oppression of some to the benefit of others. I am also one of those never-satisfied liberals that always thinks that we (humans) can and should do better in all things. That the fight to acknowledge each others humanity is ongoing and it is the one fight, above others, that is worth fighting, always. So, potential bias and definite perspective stated, we should move on…

The Last Word piece is here, and you should watch it: “Rewriting Lies on Planned Parenthood.” The original lie came from John Kly, and was definitely worth rewriting. Our host offers up insight on how the echo chamber works, and how it can ruin a person’s perceived integrity. What I noted with great interest was what came next – a reading of a letter from a friend dependent on Planned Parenthood. What was in the letter mirrors the feelings and needs of thousands of women in the US. O’Donnell’s reaction rang true to me and I have great respect for the courage it takes to show those moments of vulnerability. Our culture does not encourage those moments, and actively discourages them from men in particular.

Of course, the piece did not go without some criticism. This is Glenn Beck, and Lawrence O'Donnell’s response to Beck’s response to O’Donnell: “Defending Planned Parenthood.” According to Beck, only “prostitutes” that need “400 abortions” use PP. O’Donnell is able to put that down with ease, and far more grace than I could have mustered, to be sure. Other noteworthy content includes a meta commentary on the nature of commentating on television which would be well worth watching by itself.

Planned Parenthood’s response to Glenn Beck’s hateful claim is here: Planned Parenthood Press Release.

Although I want to dedicate an entry to it shortly, here is my CrowdRise Planned Parenthood fundraiser:  Lizz Winstead’s “Planned Parenthood, I am here for you!” Tour.
 

I had more to say, but I think I am out of spoons.

On Social Justice Blogging - Jumping in the Pool Head First - Advice

I have thought long and hard about trying to become part of the social justice blogging community. As a reader/lurker over the past handful of years or so, I have watched the public side of some very ugly shit (ableism, racism, fat hatred, identity policing…) going down on various sites. I assume that what went on behind the scenes was much, much worse. I also figure that any community is made up of people, and sometimes people are like that. 

Yet, I still have things to say and a desire to say them – even if they are only ever seen by some family and friends. And you!

I think that it is inadvisable to trust someone just because they share a common interest, even when that interest is supposed to be the “tide that lifts all boats.” So I will make what connections I can based on personal observation rather than assuming that someone with an SJ cause is going to know, understand, or care about what I hold dear. I expect to be treated the same.

I know that I will be distrusted by a lot of folks because I am white, and I get that as much as I can. I am also bisexual, disabled (although I pass occasionally), born and raised lower class (not so much now, but that stays with you in ways that are surprising and disturbing), pervy, nontheistic, and poly. This is not an Oppression Olympics entry; I just want to lay it out there here and now. Where I am privileged I will endeavor to be the best ally I can be and promise to improve at each opportunity.

At home, I have a saying, "The reason we do not argue when I am wrong is because I think before I flap my jaw and when I am wrong I apologize and shut the hell up!"

What is your advice for speaking your piece with strength, compassion, and integrity while weathering whatever storm may blow?

I may be late getting to comments today. I have a physical issue that is kicking my metaphorical ass and I am going to go look at a car today. Cross your tentacles if you care to do so - I could really use a car! This is the reason for the super early post and my anticipated absence.

Here is a sneak peak at what I have cooking for you, Dear Reader: a vitriolic crip rant I wrote one lonely night, a review of a product called Pill Glide, some thoughts on blogging while avoidant, some more Things That Make My Life Easier (with something catchier to call it, perhaps!), my experiences with Moore and Me, some neato links, and a small series of articles detailing my politics and why I think they are the correct choices for me.

Stating the Obvious on Medical Costs

In editing this piece, I realize that it is fairly hot and heavy handed. I simply cannot apologize for my vehemence, but now you know that it is there.

Many don’t take prescriptions because of the cost

I saw this on abbyjean's Tumblr.

Wow, LA Times, really?!? Gee, next they will find out that people break compliance with follow up or specialist visits due to money or circumstance. Holy fuck, do folks really have their heads buried quite that deeply up their own asses?

Yes, people want to follow up with their doctor’s orders, recommendations, prescriptions, suggestions, and referrals. This is why low income folks have such terrible compliance levels. Fucking hell. I can think of three big roadblocks right off the top of my head: no money, no time off from work or childcare, and no ride. We can dig deeper: some people are neglected and abused, at home and maybe at previous providers. Have you shamed a patient away because they were fat, slutty, or sloppy*? Did you do it with some snide comment in the hallway you thought they couldn’t hear?

We want to get better, just like everyone else does, dammit! There’s just a lot in the way that you cannot see, because you see a diagnosis waiting to be made, not a whole person. Can you just take one damn minute before you put your hand on the blasted door knob, and deliberately employ a gestalt point of view for just sixty bloody seconds? Are they seeing you on Medicare, Medicaid, or their own dimes? If the patient has transportation programs, sliding scales, pharmacy discounts, and/or drug manufacturer discounts available to them do they even know? Because it is just as bad as having no options if you do not know they exist.

Sure, maybe you and your staff just cannot handle trying to keep track of that on top of every thing else you have to manage. I get that, I really do. So help the economy by hiring someone to do it for you – all they would need is a high school degree, some empathy, and some tenacity. With the additional people you can help, maybe it will even cover an additional employee.

* Fat, slutty, or sloppy were just a few adjectives I have heard office or hospital staff use regarding patients. I offer no judgments to folks that are fat, appear to numerous sexual partners (people suck), or folks who have a hard time bringing themselves around to what their community considers acceptable appearance standards. Neither should their damn medical professionals!

SmartAss Commentary: Niaspan Commercials

Niaspan

Oh, how I loathe these commercials for Niaspan. Have you seen these? Wow, these pieces of passive-aggressive, sly, guilt-ridden pabulum are just stunning.

Here is the “brother” version. There is at least one more, but I cannot find a link for it. It is not quite as bad, but still not good. Scratch that, there are three total, and they can be found on the Niaspan homepage here.

I find these commercials to be full of coddling, wheedling, coercive, bullshit. It is hard enough to manage a chronic illness/injury/disability – we really do not need to be badgered by our friends and family. I think the idea that these are “interventions” kind of trivializes the actual purpose of an intervention, you know – giving a loved one a chance to stop and think about what they are doing to themselves and the people around them. To let them know that they are loved and supported, and that this will still be true if they try to change their lives for the better. It is usually reserved for exceptionally destructive behavior.

Take the brother commercial – the speaking brother is chastising the audience brother about the fact that he is not taking Niaspan. Never mind the facts that the brother has made the diet and lifestyle changes that are necessary for his condition. Oh, no – he isn’t doing enough because he isn’t taking this pill! What if he is already taking niacin? Or what if he has a contra-indication, like liver trouble? The speaking brother apparently does not care. He has decided what is best, and damn anything else.

The daughter commercial does not specify what other changes the audience dad has made. But she is going out on an awfully long limb for something that “might” work.

The sister commercial is mind boggling. “I know one more pill… I get it, I do,” No she does not, or she would not follow that with, “I am not taking ‘no’ for an answer.” The gall on display is stunning. Of course she knows best, how it could be any other way is beyond her grasp.

These commercials are demeaning to health care customers. They play into the all-to-common assumption that we, as individual patients, are either too stupid or too lazy to consult with our doctors, do our own research, and make our own decisions.

If you do have a friend or loved on that is dealing with cholesterol issues, it is totally okay to offer your support. As with other health issues, save your advice for when you are asked for it. No, we do not want unsolicited advice – by definition. If we wanted it, we would seek it out and ask you.

While looking for links to the commercials themselves, I found some folks that despise this almost as much as I do at CommercialsIHate.

Niaspan on Wikipedia is here. (This entry is actually about Niacin. Niaspan is apparently prescription strength, time release Niacin.)

Awkward Moment, 2

The other day I was in the hospital with some friends I was supporting, and since the day was long (what day in a hospital isn’t?), I spent it in my wheelchair.

I was at the corner of my friend’s bed, and pretty out of the way. A nurse came in to prep for a new patient in the room’s other bed, which is fine. She decided I was in her way, looks down at me, and says “I’m going to have to move you.” A nurse! I responded, “No, you are going to ask me to move and I will move.”

My friend saw it, even with all she was going through, and mentions it in the comments here.

Alright, I am occasionally known amongst my friends as having high expectations for other people… But I will be damned before I find it unreasonable to expect a medical professional in a hospital to know some damn wheelchair etiquette!

Would you tell an able-bodied person that you needed to move them? No. If you would not say it to a temporarily able-bodied person, then do not say it to a person in a wheelchair!

Edit: for grammar.

The SmartAss Guide to Wheelchair Etiquette

(Updated!)

Alright, this is going to consist of one solid concept and then variations on what to do with that concept. With the amount of faux paux, ignorance, and just straight up bad behavior I have seen myself, I feel like this is necessary. I do not believe that I should have to add a sarcasm warning to something with the words "smart ass" in the title, but there you go.

If you find yourself sputtering “But, but…” or getting angry or defensive – well, you will have to deal with that. There are guides out there that are more politic, nice, and cater to the discomfort that the able-bodied or temporarily able-bodied feel in these situations. I do not give a damn about that. You have been warned!

Main concept: a person in a wheelchair is just that – a person in a chair. Person. Chair. That is it. The corollary to that is this: do not do ridiculous shit. If you remember nothing else, remember this, and it should guide you well.

Editorial note: I often just say "wheelchair" as that is the scope of my experience. As far as I know, all this also applies to the users of scooters and power chairs. If I am mistaken, please let me know in the comments and I will happily make appropriate changes.

Now let’s talk about how that plays out in real life.