PatientC Lives!

It may be news to you, but PatientC still lives. Yes, yet another "get blogging again" effort shows fruit, so let us get fruity!

A tuxedo "pit bull" puppy with a content, silver haired PatientC.

In recent times I have been writing again, and thinking of you, Dear Reader. I finally decided that it should be up to you whether or not you expose yourself to my various news, ideas, and brain drippings. I will share what I want to share, and you can read what you want to read. Consent is a great thing!

Some family, some Family, friends, and associates will now read this, so I have to give this caveat: while I appreciate your attention, please understand that I have to write as if you will never see this space. That does not absolve me from hurt feelings, misunderstandings or other results of us meeting here, it just means that we will have to deal with them together, if you want to deal with them at all. 

Life was in a weird place for a while: I am getting around better, sleeping better, loving more demonstrably, being there, and doing some things more. This has a lot to do with the love and support I have at home, with dealing with ailments and problems more clearly, celebrating victories honestly, and with managing the pain that interfered in every aspect of that life.

The past year saw me lose 50 lbs (because I can move again!), be there for my family (they were the ones in and out of the hospital this time, how weird!), get a dog (Nissi!), and commit myself to learning more about Buddhism even if my attendance at meditation practice has been spotty.

I intend to resume a lot of my regular features: Gimpy Gamer, Buddhism, social justice, disability, Things That Make My Life Easier, reviews, sex - most anything I can hold in my head long enough to get it to you. This means updating most of the whole damn blog, so changes ahead!

Bright New Year 2014

PatientC, winter style. 

Ready to start the New Year? Well, the first month of it is almost half over already! What are you going to do with it? That is what I am asking myself, and taking stock of where my ambitions took me last year.

The smoking cessation quest is at an end. I have one or two clove cigarellos (cigarettes) a day, thanks to vaping, eCigs, lots of support, and a lot of willpower. 

This blog turned four, I think. I did better than the previous years regarding getting posts up for your reading pleasure. But I am nowhere near where I want to be. I want to post at least twice a week, that is my goal again for this year. I wrote about a lot of things, and while I think it is important to show that disability is just a way of living and not life itself, I do want to get back to some basics on that front.

I finally invited Buddhism into my life in a more serious way, and that is probably one of the most wise decisions I made this past year. It feels like a natural, right direction for me. The Boyfriend and I attend regular meditation! It is the perfect event for the avoidant girl: get together with folks to sit and be quiet and well, meditate. That makes me giggle, but I am also socializing and learning. I am going to continue to travel down this path this new year.

Weight was a bother. I started the year wasting, so I spent a big part of it eating what I could, when I could, and the more filling the better. When I stopped wasting I put on more weight than I wanted. I am battling social pressures about weight and expectations about weight and disability. I need a solid weight/fitness level that will help see me though not just regular life, but my myriad illnesses/conditions/etc... With better pain management I can move about more, so I have hope that with effort I will be better able to not just manage but own my own form.

I have become a better advocate for myself when dealing with the healthcare community, but I still need some work here. It is so much easier to stand firm for my Minions (daughters) or the Husband than it is for me, and that is problematic.

Speaking of the Minions, things have been hit and miss there. One Minion is doing so much better in school, but the other is having difficulty just getting out the door to attend class. They both need help, and I feel I am just not getting them what they need. Our relationships are shifting to interacting with them as actual folks while also maintaining child/parent relations - it is confusing and frustrating when it is not exciting.

I will talk about all this and more in the upcoming year. I plan on seeing you more often, Gentle Reader!

Keeping On

As I am working on some new content, I wanted to let you know, Gentle Reader, what is going on in this crip(pled) life. 

The eCig smoking reduction/cessation thing is going well. I am down to 12 cloves or less a day, from an initial 30-36 at my peak smoking. This weekend we took a road trip, which usually means a huge amount of smoking on my part, and I only smoked about 8 cigs! I am feeling good about it in general, even though some days are really frustrating.

The Minions (my daughters) are back in school. Hurrah! They are old enough that we can see their adulthood rapidly approaching. I feel like we have not done nearly enough to prepare them for life on their own. 

I am unhappy with my weight and am doing what I can to get that back under control. Well, what is under my control. Last year I wasted to an alarming weight and this year I have done the opposite.

Studying Shambhala Buddhism is a deep learning experience. I have found that I give much more room for learning, for forgiveness, kindness, and gentleness to others than I have for myself over the course of my lifetime. I am facing what disability means to me personally and socially as it interacts with meditation and sometimes causes me to not participate as I would wish. Every time I feel myself close to living in the moment, I feel as if I am putting down an impossible burden of my own design. The one retreat we attended leaves me wanting to attend more but unfortunately there is no longer a regular sitting held in my city.